I invited an adult with a neuroimmune condition onto the podcast to discuss his experience and provide listeners with some insight on what children with PANS/PANDAS and other neuroimmune conditions may not have the words to describe. This special guest happens to be my husband, Ed. This episode is part 2 in a 3 part series. Next week, you'll hear me discuss my experience as a caregiver.In this episode, you’ll learn:What a child with a vulnerable nervous system may long for you to know, but doesn't have the ability to tell you verballyWhat kind of caregiver response really helps (sometimes) How the Dysregulation - Shame Cycle feelsRead a summary or the full transcript on my website: https://robyngobbel.com/neuroimmuneinsideoutResourcesPANDAS physician network https://www.pandasppn.org/Neuroimmune Foundation https://neuroimmune.org/ASPIRE: The Alliance to Solve PANS and Immune Related Encephalopathies https://aspire.care/Monster in Me Documentary: https://www.themonsterinsideme.com/Over on my website you can find:Masterclass and eBook on What Behavior Really Is (FREE)eBook on The Brilliance of Attachment (FREE)Ongoing support, connection, and co-regulation for struggling parents: The ClubYear Long Immersive & Holistic Training Program for Parenting Professionals: Being WithCalling all Parenting Professionals!Do you listen to this podcast to support the work you do professionally with kids and parents?  WELL! I have something perfect in store for you.  A FREE five day audio-training called Become a Better Parent Coach.   Register now at https://robyngobbel.com/betterparentcoach! One episode is already waiting for you and the rest will begin on October 24, 2022! *******The Club is a virtual community for the families of kids with big, baffling behaviors and the professionals who support them.    https://robyngobbel.com/theclubApplications for the 2023 cohort of Being With ~ a year-long immersive and holistic program for parenting professionals ~ are now open!  https://robyngobbel.com/beingwith