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F**king Epilepsy | S1 | E10

F**king Epilepsy | S1 | E10

FromThe Skies We’re Under


F**king Epilepsy | S1 | E10

FromThe Skies We’re Under

ratings:
Length:
52 minutes
Released:
Apr 13, 2022
Format:
Podcast episode

Description

Sarah, Rachel and Lucy open up and talk all things epilepsy in today’s podcast. There are no fluffy unicorns or rose-tinted glasses here. We’re real, raw and talking about epilepsy from a parent perspective.  
Witnessing it, treating it and living on the brink of when it might strike again. So essentially this episode should just be one big trigger warning. But if you might find it helpful to know you are not treading the epilepsy tightrope alone – listen in as we swear and rant about: 
Different types of seizure 
Diagnosis 
Monitoring epilepsy 
SUDEP (Sudden unexpected death in epilepsy) 
Medications and other treatments 
Making YouTube films of different seizure types 

 Trigger warning we talk all about Epilepsy and it is traumatic to witness. This conversation includes Sudden Unexpected Death in Epilepsy (SUDEP). 
 Useful and reputable information 
All about epilepsy from NHS 
Sami alert (as talked about by Lucy) 
SUDEP action 
Children epilepsy charity 
Different epilepsy monitoring options highlighted in epilepsy UK 
Released:
Apr 13, 2022
Format:
Podcast episode

Titles in the series (53)

Nurse, author and Director of Born at the Right Time, Rachel Wright talks to fellow parents of people with disabilities and others in their community. With the power of story telling, laughter, swearing and useful information they create solace in knowing the warts and all truth of this off piste version of parenting. Whether a well seasoned parent, newbie, one of many practitioners supporting families or simply someone wanting to peak over the fence - you’re welcome to listen in. We are better together, whatever Skies We’re Under.