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This week, Lucy Parr, Sarah Clayton and Rachel talk about some of the helpful and unhelpful ways we deal with times of stress and transition. None of us are trained to provide professional advice but we do talk honestly about the truth of our complex realities and how we try to live life well.
Trigger warning: Very early on in this episode we talk about the fear and potential for childhood death, DNACPR, childhood cancer and stroke.
We also do laugh a lot because this world we live in manages to have both – despite the absurdity of it all. Please do not listen to this episode if this will not serve you well. We also discuss the importance to have conversations about our children’s end of life care. Details of resources are below.
The following resources are discussed during the podcast:
ReSPECT documents and end of life discussions.
Completing the stress cycle. You can listen to the brilliant podcast with Brene Brown, Emily Nagoski and Amelia Nagoski, How to complete the stress cycle. Or read Emily and Amelia’s book.
Affinity hub website: emotional support for parents of children with special needs.
Day-by-Day: emotional wellbeing in parents of disabled children. Jo Griffin

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