Coping with Dementia
By Laura Town and Karen Hoffman
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About this ebook
If you have been diagnosed with dementia or are providing care to someone with dementia, you are not alone, although you often may feel that way when confronting this terrible illness. But don’t give up hope. The resources in this book can help you cope with the diagnosis and prepare emotionally for the changes that will follow. They will also help you identify and treat the anxiety, depression, stress, and other emotional effects of caregiving and tailor strategies to your loved one’s emotional needs.
Laura Town
Laura Town is an experienced author and editor who has contributed to many books for the academic, professional, and lay populations. Laura has written on a variety of topics of special interest to the aging population. She has expertise in the field of finance, and she has contributed to several online nursing courses and texts. Her work has been published by John Wiley and Sons and the American Society of Journalists and Authors, and she has also written for the American Medical Writers Association (AMWA). As an editor, Laura has worked with Pearson Education, Prentice Hall, McGraw-Hill Higher Education, John Wiley and Sons, and the University of Pennsylvania.Laura is the founder and president of WilliamsTown Communications, a company that creates educational courses and texts for publishers, universities, and non-profits. She is also the past president of the Indiana chapter of AMWA.
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Book preview
Coping with Dementia - Laura Town
Coping with Dementia
By Laura Town and Karen Hoffman
Published by Omega Press
Zionsville, IN 46077
© 2020 Omega Press
ISBN: 978-1-943414-22-2
While we have made every attempt to ensure that the information contained in this book has been obtained from reliable sources, Laura Town, Karen Hoffman, and Omega Press are not responsible for any errors or omissions or for the results obtained from the use of this information. The information is provided as is
without warranty of any kind. The information available in this book is for informational purposes only and not for the purpose of providing legal, financial, or healthcare advice. You should contact your attorney, financial planner, or physician to obtain advice with respect to any particular issue or problem. In addition, Laura Town, Karen Hoffman, and Omega Press do not endorse any products mentioned in this book, nor do they assume any responsibility for the interpretation or application of any information originating from such content.
Production Credits:
Authors: Laura Town and Karen Hoffman
Publisher: Omega Press
Distributor: Smashwords
Photos: All images used under license from Shutterstock.com
Social media connections:
Laura Town
Twitter: @laurawtown
LinkedIn: https://www.linkedin.com/in/lauratown
Karen Hoffman
LinkedIn: www.linkedin.com/pub/karen-kassel/62/2b/915/
Smashwords Edition, License Notes
This ebook is licensed for your personal enjoyment only. This ebook may not be re-sold or given away to other people. If you would like to share this book with another person, please purchase an additional copy for each recipient. If you’re reading this book and did not purchase it, or it was not purchased for your use only, then please return to your favorite ebook retailer and purchase your own copy. Thank you for respecting the hard work of the authors.
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Audiobook, ebook, and paperback available where books are sold
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Table of Contents
Introduction
Chapter 1: Emotional Considerations for the Individual with Dementia
How Dementia Progresses
Checklist: Early changes to expect with dementia
How to Cope if You Have Been Diagnosed with Dementia
Checklist: How to cope with a diagnosis of dementia
Ways That Caregivers Can Help an Individual Cope with Dementia
Checklist: Developing a coping strategy
Checklist: Helping the individual with early-stage dementia maintain a good attitude
Checklist: Managing the health of an individual with dementia
Checklist: Tips for the caregiver when the individual enters the later stages of dementia
Checklist: Considerations to help children adjust
Chapter 2: Emotional Considerations for the Caregiver
All Caregivers
Managing Emotions
Checklist: How to manage negative effects of caregiving
Grief
Checklist: The stages of grief
Checklist: Managing grief
Checklist: Suicide risk and prevention
Reducing Stress
Checklist: Basics about managing your role as a caregiver
Checklist: Basics about reducing stress
Checklist: Basics about maintaining a positive attitude
Checklist: Basics about practicing positive self-talk
Checklist: Basics about relaxation techniques
Maintaining Communication
Checklist: Basics about communicating with your support network and other caregivers
Checklist: How to maintain friendships and other relationships
Maintaining Health
Checklist: How to Stay Healthy
Ensuring Proper Care in a Facility
Checklist: How to ensure proper care is being given in a facility
Spouses
Checklist: Basics about changing marital roles
Checklist: Basics about changing physical and emotional intimacy
Checklist: How to manage grief as a spouse’s dementia progresses
Adult Children
Checklist: Things to consider when taking care of your parent
Checklist: Things to consider when sharing responsibility with family members
Emotional Considerations for Non-Caregiver Family and Friends
Checklist: Things to consider when accepting and understanding the changes associated with dementia
Checklist: Emotional considerations for non-caregiver kids and teens
Checklist: Emotional considerations for non-caregiver family and friends
Chapter 3: Coping with the Behavioral Changes of Dementia
Checklist: How to cope with agitation and aggression
Checklist: How to cope with delusions and hallucinations
Checklist: Common personality and behavior changes
Checklist: How to cope with personality and behavior changes
Checklist: How to cope with sundowning
Checklist: How to cope with changes in communication skills
Chapter 4: Receiving Emotional Support
Checklist: Basics about community and faith-based support
Checklist: Basics about support group
Checklist: Basics about counseling and therapy
Checklist: Types of counseling for dementia
Conclusion
About the Authors
Laura Town
Karen Hoffman
More Titles from Laura Town and Karen Hoffman
Resources
Reference List
Omega Press Sample Content
Introduction
People, whether they be friends or strangers, will be sympathetic when you tell them that a loved one has dementia. Not knowing how to respond, people will try to find something positive to say about your tragedy—and dementia is tragic. The one comment that bothered me (Laura) the most, although the intention behind it was good, was that at least my father doesn’t know what’s happening to him.
This is completely false. My dad, in the early and even in the mid stages, knew what was happening. Yes, he couldn’t articulate it all the time. Yes, he could not go into detail about the functions of the brain or give a scientific explanation of what was happening. But he knew that he could no longer complete simple tasks. He cried when he could no longer drive. He was enraged when he could not remember the names of his relatives. And he sank into a deep depression when he had to start wearing adult diapers. Even in the late stages when dad was living in a locked dementia unit and before he became nonverbal, my father pointed to adults rocking baby dolls and said to me that he wished he wasn’t one of those people.
Dad’s doctor told me that if you’ve seen one case of Alzheimer’s disease, it just means that you’ve seen one case of Alzheimer’s disease, meaning that all cases are different. Perhaps some people slide straight from complete cognition to the late stages of Alzheimer’s disease and truly do not have any frustration while being in the throes of the disease, but I have never heard of this.
So people with dementia do know, on a fundamental level, what is happening. That doesn’t mean that they know it every day, or even every hour, or become obsessed with their declining health. Dad still had happy moments. He still enjoyed taking walks, listening to music, seeing his grandsons, and eating cupcakes.