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112: Interview: Why Representation Matters within the Endo Community, with Julia Mandeville of Barbados

112: Interview: Why Representation Matters within the Endo Community, with Julia Mandeville of Barbados

FromIn Sixteen Years of Endometriosis


112: Interview: Why Representation Matters within the Endo Community, with Julia Mandeville of Barbados

FromIn Sixteen Years of Endometriosis

ratings:
Length:
61 minutes
Released:
Sep 7, 2023
Format:
Podcast episode

Description

Today we are so excited to speak with Julia Mandeville. Julia is the co-founder of the Barbados Association of Endometriosis & P.C.O.S. She is currently a doctoral student and as part of her role as a graduate researcher, she is the project coordinator of several research studies investigating barriers to diagnosis for Black people with endometriosis and PCOS. She has focused much of her research and public health intervention efforts on investigating endometriosis in underserved populations, Black women in particular because the disease is not well studied in this population.



In 2023, Julia was among the first group of recipients of the Mentoring for Anti-Racism and Inclusive Excellence (MARIE) program. With her MARIE grant, she seeks to further understand the specific barriers Black women with endometriosis encounter in terms of structural racism, systemic discrimination, and internalization of the Strong Black Woman schema.



Julia speaks to us today about her research, how a lack of representation affects Black endometriosis patients, and her hopes for the future of endometriosis care in the Caribbean.



CONNECT WITH JULIA



INSTAGRAM @endoandpcosbb
Released:
Sep 7, 2023
Format:
Podcast episode

Titles in the series (100)

Laugh, cry, and shout with us as we talk all things endometriosis. We’re 2 witty best friends that pride ourselves on sharing accurate, well-researched information. We delve into all those embarrassing did-that-really-just-happen?! endo stories, talk vulnerably about our personal growth, and share disease facts with a side of humor. We hope our podcast will support and empower you. —Important note on inclusive language: We hadn’t yet been educated about inclusive language when we began our podcast; but after learning, we used this language midway through the show and going forward.