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Where I have been the past two months

Where I have been the past two months

FromConfessions of a Rare Disease Mama


Where I have been the past two months

FromConfessions of a Rare Disease Mama

ratings:
Length:
34 minutes
Released:
May 3, 2023
Format:
Podcast episode

Description

I am back from my unexpected break and I am here to catch you all up on what has been happening in our family the past two months. For those of you who are unaware, our son, Roman, just got back home after a 55 day stay  at our children's hospital (49 of which were spent in the PICU). He was intubated two times during his hospitalization (yes, two) for a total of 19 days while battling viruses that turned into a viral pneumonia and then developed a bacterial pneumonia which led to a very scary episode of septic shock. This was a pretty emotional episode for me to record, as this whole situation is still pretty fresh so I do want to put a *content warning* in for those who are triggered by hospitals, ICU, or just have medical trauma in general. Although this experience was the toughest and scariest that our little family has had to endure, it serves as a good reminder that even during our darkest times, there is always light to be seen if you look close enough. We are overjoyed that Roman is back home now and doing well. It is nothing short of miraculous! Thank you all for bearing with me as we contiunue to settle back in to "normal" life after having everything on pause during Roman's recovery!Watch our reel of the day we got to bring Roman home!https://www.confessionsofararediseasemama.com/Learn more about my children's fight with ASMD and donate to our cause:https://www.saveromanandstella.com/Follow on instagram: https://www.instagram.com/confessionsofararediseasemama/
Released:
May 3, 2023
Format:
Podcast episode

Titles in the series (48)

Join me every week as I navigate the ups and downs, and everything in between of the crazy stressful, but always beautiful life of being a rare disease parent.