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    Confessions of a Rare Disease Mama

    Confessions of a Rare Disease Mama

    Confessions of a Rare Disease Mama

    ratings:
    Length:
    48 episodes
    Language:
    English
    Format:
    Podcast

    Description

    Join me every week as I navigate the ups and downs, and everything in between of the crazy stressful, but always beautiful life of being a rare disease parent.
    Language:
    English
    Format:
    Podcast

    Episodes1 - 10 of 48 episodes

    Title

    Mission: Inclusion with Speech Language Pathologist & inclusive children's book author, Megan Craft

    Send us a Text Message.Welcome to the podcast, Megan Craft! Megan is a Speech Language ...

    47 minutes
    		May 21, 2024

    How to get through a long hospital stay & my inpatient must-haves

    Send us a Text Message.In honor of Roman being home for one whole year from our terrify...

    40 minutes
    		May 07, 2024

    All things TRAVEL with Accessible Adventures Founder, Kristy Cook

    Send us a Text Message.I hope ya'll have a pen and paper to write down ALL the amazing ...

    82 minutes
    		Apr 16, 2024

    My inner debate on a third child and what I have come to realize

    Send us a Text Message.There are SO many complex emotions that come along with the ques...

    21 minutes
    		Apr 03, 2024

    Talking about all the things with The Rare Life's Madeline Cheney

    Send us a Text Message.This week I sit down with founder and host of The Rare Life, Mad...

    82 minutes
    		Mar 26, 2024

    Turning grief and trauma into growth and healing with Past Life Regression Therapist, Alena Gourley

    Send us a Text Message.This week I sit down with the beautiful, wise and talented, Alen...

    60 minutes
    		Dec 26, 2023

    Catchup/ dealing with the holiday blues

    Send us a Text Message.It's been a whirlwind month, so I'm catching you all up on what'...

    21 minutes
    		Dec 02, 2023

    How to fundraise like a BOSS with special guest and fellow rare mama, Brittany Markham

    Send us a Text Message.This week I have my friend, Brittany Markham, on the podcast to ...

    82 minutes
    		Oct 31, 2023

    Life Update

    Send us a Text Message.I'm officially a workin' woman again, guys. Okay, well let me cl...

    26 minutes
    		Oct 23, 2023

    When the "FOMO" starts creeping in as a medical parent

    Send us a Text Message.Have you experienced FOMO as a special needs parent? Of course y...

    24 minutes
    		Oct 06, 2023