Discover this podcast and so much more

Podcasts are free to enjoy without a subscription. We also offer ebooks, audiobooks, and so much more for just $11.99/month.

23: The Story of James

23: The Story of James

FromThe Rare Life


23: The Story of James

FromThe Rare Life

ratings:
Length:
33 minutes
Released:
Nov 19, 2020
Format:
Podcast episode

Description

As a former police officer, Jenny was prepared for the extreme stress of living 200 miles away from her baby in the hospital for nine-months as he fought for his life threatened by severe birth defects as a result of his extremely rare genetic syndrome (one that her 9-year-old and my 2-year-old son share).
In this episode, she hilariously recounts describes her memo-writing for each medical appointment, her bottling up of emotions to hold it together, and how refreshingly normalcy of arguments you can expect between any 9-year old boy and his mom.
For comments, pictures, and more check out the my website, https://therarelifepodcast.com.
Released:
Nov 19, 2020
Format:
Podcast episode

Titles in the series (100)

This is the real, raw, and all the feels of loving a child with disabilities. Episodes feature parent-guests, professionals, and solo episodes with host Madeline Cheney. Their authentic conversations don’t shy away from the strong and mixed emotions that often accompany medically-complex parenting. Parents listen in to feel seen, validated, and receive much-needed solidarity. Professionals working with disabled people listen in to better understand what is often going on under the surface for a family living with disabilities.