Discover this podcast and so much more

Podcasts are free to enjoy without a subscription. We also offer ebooks, audiobooks, and so much more for just $11.99/month.

One family, two different rare diagnosis' with special guest (and a TRUE rare disease warrior mom) Nadia Slatch

One family, two different rare diagnosis' with special guest (and a TRUE rare disease warrior mom) Nadia Slatch

FromConfessions of a Rare Disease Mama


One family, two different rare diagnosis' with special guest (and a TRUE rare disease warrior mom) Nadia Slatch

FromConfessions of a Rare Disease Mama

ratings:
Length:
65 minutes
Released:
Oct 4, 2022
Format:
Podcast episode

Description

You guys. I'm so excited to share this beautiful conversation with you this week.Nadia is the definition of a true super mom.  After giving birth to two healthy children, she had her third child, Zayn, who was diagnosed with Niemann Pick Disease Type C. After dealing with the devastating diagnosis and then loss of her beautiful boy at age 4, she gave birth to another precious son, Rayyan, who was later diagnosed with a completely different rare and life limiting disease than his late brother.  Join us as we discuss what it's like having two children diagnosed with two different rare diseases, the heartache of losing a child (while 5 months pregnant), surviving a heart attack at a very young age, and so much more. Nadia is hands down, one of the strongest Momma's I have ever had the pleasure of speaking with and a TRUE rare disease warrior mom. I am so inspired by her ability to overcome every obstacle that is sent her way like the true bad ass that she is, all while being an incredible mother, caregiver, and advocate. Oh, and I'm slightly obsessed with her accent :)SENSITIVITY WARNING for this episode: child lossWhat is Niemann Pick Disease Type C?https://nnpdf.org/niemann-pick-npc/https://www.confessionsofararediseasemama.com/Learn more about our children's fight and donate to our cause: https://www.saveromanandstella.com/https://www.confessionsofararediseasemama.com/Learn more about my children's fight with ASMD and donate to our cause:https://www.saveromanandstella.com/Follow on instagram: https://www.instagram.com/confessionsofararediseasemama/
Released:
Oct 4, 2022
Format:
Podcast episode

Titles in the series (46)

Join me every week as I navigate the ups and downs, and everything in between of the crazy stressful, but always beautiful life of being a rare disease parent.