This week I have my husband, Donald, join me to talk all about our first ever road trip with our two (medically complex) kids. It was quite an adventure and also 100% worth all the stress beforehand! I hope listening to our experience gives all you other medically complex parents the confidence you need to plan that trip you've been thinking about with your family. I promise it will all work out and the memories you make with your little ones will be priceless.  Also... We were on the news again last week! Check out our latest segment (and past segments) below :) Watch our news segment's:Watch Roman throw out the first pitch at a Red's game last year for his 3rd birthday- https://local12.com/news/local/reds-treat-children-living-with-rare-genetic-disorder-to-special-dayChannel 12 LIVE segment from last year- https://local12.com/news/local/local-mother-on-mission-to-raise-awareness-of-rare-disease-cincinnati-asmdThe LATEST channel 12 segment that aired last week- https://local12.com/news/local/local-parents-of-children-with-extremely-rare-disease-receive-fda-approval-for-potentially-cincinnati-loveland-ohio-roman-stella-arnolds-jillian-donald-enzyme-replacement-therapy-experimental-medicine?-fbpost&fbclid=IwAR3PfXoCVjRFGNgbz4jO7RgsuJIS-acMvgvbkn-2rdIPzPHUdKLKIeijqC4https://www.confessionsofararediseasemama.com/Learn more about my children's fight with ASMD and donate to our cause:https://www.saveromanandstella.com/Follow on instagram: https://www.instagram.com/confessionsofararediseasemama/