Our BIG news

FromConfessions of a Rare Disease Mama

Start listening View podcast show

Our BIG news

FromConfessions of a Rare Disease Mama

ratings:

Length:

25 minutes

Released:

Oct 25, 2022

Format:

Podcast episode

Description

This week I finally get to share the big news that we have with you all!Learn more about Parental Hope and donate to their foundation:https://parentalhope.org/https://www.confessionsofararediseasemama.com/Learn more about my children's fight with ASMD and donate to our cause:https://www.saveromanandstella.com/Follow on instagram: https://www.instagram.com/confessionsofararediseasemama/

Released:

Oct 25, 2022

Format:

Podcast episode

Titles in the series (47)

Join me every week as I navigate the ups and downs, and everything in between of the crazy stressful, but always beautiful life of being a rare disease parent.

Skip carousel

How to make connections and utilize all your resources as a rare disease parent by Confessions of a Rare Disease Mama
30 min listen
Our diagnosis journey by Confessions of a Rare Disease Mama
29 min listen
How to continue to nurture your relationship with your spouse as a special needs parent by Confessions of a Rare Disease Mama
29 min listen
The 5 minute journaling techniques I use to help declutter my brain by Confessions of a Rare Disease Mama
22 min listen
Trusting your "parental instincts" by Confessions of a Rare Disease Mama
34 min listen
Father's Day Episode with extra special guest: my husband (AKA: Dadvocate-EXTRAORDINAIRE) by Confessions of a Rare Disease Mama
38 min listen
Making the leap into a healthier lifestyle with Nutrition Coach and Personal Trainer, Sabrina Miller by Confessions of a Rare Disease Mama
54 min listen
Life Update/Stream of consciousness by Confessions of a Rare Disease Mama
31 min listen
The post-holiday funk by Confessions of a Rare Disease Mama
34 min listen
We made it to the double digits! Life update + Special Announcement by Confessions of a Rare Disease Mama
19 min listen
How to (kindly) cut ties with a therapist or doctor who is no longer serving your child in the way they need by Confessions of a Rare Disease Mama
29 min listen
How to fundraise like a BOSS with special guest and fellow rare mama, Brittany Markham by Confessions of a Rare Disease Mama
83 min listen
Learning when to let go of control (or as my Grandma always said, "que sera sera!") by Confessions of a Rare Disease Mama
21 min listen
Reminiscing about our big Florida trip with special guest: my husband, (and car-packer extraordinaire) Don Arnold by Confessions of a Rare Disease Mama
30 min listen
*BONUS EPISODE* How to deal with ignorant comments by Confessions of a Rare Disease Mama
18 min listen
Life update/stream of consciousness and how I'm learning to let grief & joy co-exist by Confessions of a Rare Disease Mama
30 min listen
Stepping out of survival mode and putting your best self forward with special guest: podcast host and life coach, Lauren Lowery by Confessions of a Rare Disease Mama
51 min listen
A COVID-style Thanksgiving by Confessions of a Rare Disease Mama
23 min listen
Best in class caregiving with mejo app founder Ryan Sheedy by Confessions of a Rare Disease Mama
52 min listen
The word(s) I will live by in 2023 by Confessions of a Rare Disease Mama
31 min listen
Our BIG news by Confessions of a Rare Disease Mama
25 min listen
Celebrating every inch-stone! by Confessions of a Rare Disease Mama
25 min listen
Stream of consciousness/ Roman turns FOUR by Confessions of a Rare Disease Mama
19 min listen
One family, two different rare diagnosis' with special guest (and a TRUE rare disease warrior mom) Nadia Slatch by Confessions of a Rare Disease Mama
65 min listen
'Tis the season for colds and flus by Confessions of a Rare Disease Mama
31 min listen
Ain't no shame in my anti-depressant game by Confessions of a Rare Disease Mama
28 min listen
How to best support the caregiver parent in your life by Confessions of a Rare Disease Mama
33 min listen
Walking through that pesky tunnel of grief by Confessions of a Rare Disease Mama
19 min listen
Catchup/ dealing with the holiday blues by Confessions of a Rare Disease Mama
21 min listen
Where I have been the past two months by Confessions of a Rare Disease Mama
34 min listen

More Episodes from Confessions of a Rare Disease Mama

Skip carousel

How to get through a long hospital stay & my inpatient must-haves by Confessions of a Rare Disease Mama
40 min listen
All things TRAVEL with Accessible Adventures Founder, Kristy Cook by Confessions of a Rare Disease Mama
83 min listen
My inner debate on a third child and what I have come to realize by Confessions of a Rare Disease Mama
22 min listen
Talking about all the things with The Rare Life's Madeline Cheney by Confessions of a Rare Disease Mama
82 min listen
Turning grief and trauma into growth and healing with Past Life Regression Therapist, Alena Gourley by Confessions of a Rare Disease Mama
61 min listen
Catchup/ dealing with the holiday blues by Confessions of a Rare Disease Mama
21 min listen
How to fundraise like a BOSS with special guest and fellow rare mama, Brittany Markham by Confessions of a Rare Disease Mama
83 min listen
Life Update by Confessions of a Rare Disease Mama
26 min listen
When the "FOMO" starts creeping in as a medical parent by Confessions of a Rare Disease Mama
24 min listen
Is my child's diagnosis a "karmic wake up call" from the universe? by Confessions of a Rare Disease Mama
25 min listen
Coffee & catchup by Confessions of a Rare Disease Mama
26 min listen
My top travel tips for road tripping with your medically complex child by Confessions of a Rare Disease Mama
24 min listen
Ain't no shame in my anti-depressant game by Confessions of a Rare Disease Mama
28 min listen
A Father's Perspective with Rare Disease Dad & Director of Community Engagement for Global Genes, Mr. Daniel DeFabio by Confessions of a Rare Disease Mama
55 min listen
Top lessons I have learned in my first four years of being a rare disease parent by Confessions of a Rare Disease Mama
38 min listen
How to best support the caregiver parent in your life by Confessions of a Rare Disease Mama
33 min listen
Where I have been the past two months by Confessions of a Rare Disease Mama
34 min listen
How to find and manage the right care team for your medically complex child by Confessions of a Rare Disease Mama
31 min listen
Career transitions and life as a rare disease mom to twins with Angel Aid Cares Operations Manager, Megan Loden by Confessions of a Rare Disease Mama
65 min listen
The word(s) I will live by in 2023 by Confessions of a Rare Disease Mama
31 min listen
Cheers to a new year! Our top moments of 2022 by Confessions of a Rare Disease Mama
33 min listen
Walking through that pesky tunnel of grief by Confessions of a Rare Disease Mama
19 min listen
How to fit in some fun during the busy month of December by Confessions of a Rare Disease Mama
23 min listen
Family planning after a diagnosis with special guest and fellow rare mama, Taylor Sabky by Confessions of a Rare Disease Mama
69 min listen
A COVID-style Thanksgiving by Confessions of a Rare Disease Mama
23 min listen
Learning when to let go of control (or as my Grandma always said, "que sera sera!") by Confessions of a Rare Disease Mama
21 min listen
Stepping out of survival mode and putting your best self forward with special guest: podcast host and life coach, Lauren Lowery by Confessions of a Rare Disease Mama
51 min listen
'Tis the season for colds and flus by Confessions of a Rare Disease Mama
31 min listen
Making the leap into a healthier lifestyle with Nutrition Coach and Personal Trainer, Sabrina Miller by Confessions of a Rare Disease Mama
54 min listen
Celebrating every inch-stone! by Confessions of a Rare Disease Mama
25 min listen

Related podcast episodes

Skip carousel

Trusting your "parental instincts" by Confessions of a Rare Disease Mama
34 min listen
How to make connections and utilize all your resources as a rare disease parent by Confessions of a Rare Disease Mama
30 min listen
A COVID-style Thanksgiving by Confessions of a Rare Disease Mama
23 min listen
How to (kindly) cut ties with a therapist or doctor who is no longer serving your child in the way they need by Confessions of a Rare Disease Mama
29 min listen
When the "FOMO" starts creeping in as a medical parent by Confessions of a Rare Disease Mama
24 min listen
How to find and manage the right care team for your medically complex child by Confessions of a Rare Disease Mama
31 min listen
How to best support the caregiver parent in your life by Confessions of a Rare Disease Mama
33 min listen
How to fit in some fun during the busy month of December by Confessions of a Rare Disease Mama
23 min listen
170 - REBROADCAST - Responding to anxiety in kids: Today on the podcast we are rebroadcasting this episode on anxiety in children. We have been getting a lot of questions about this topic, especially in the past year with so much upheaval. I got to hang out with Jess, a therapist and the face behind... by Voices of Your Village
47 min listen
I Had A Ghost Best Friend! / Men Set The Tone Of The Relationship?! - Ep. 88 by I.E In Besties
40 min listen
Celebrating every inch-stone! by Confessions of a Rare Disease Mama
25 min listen
Ep.67 - How One Decision Can Change The Trajectory of Your Life! & More! by I.E In Besties
101 min listen
Ain't no shame in my anti-depressant game by Confessions of a Rare Disease Mama
28 min listen
Our diagnosis journey by Confessions of a Rare Disease Mama
29 min listen
Are You Raising Your Tweens and Teens For Adulthood? How To Parent On Purpose with Amy Carney by Moms of Tweens and Teens
33 min listen
Finding the Magic of Birth by Find The Magic
53 min listen
64: Kids Nutrition with Jaime L. Mathews by Realfoodology
83 min listen
Parental Guilt, Psychic & Healing plus a small crystal crisis! by Mediumship Matters
30 min listen
The Murder of Darlene VanderGiesen by Moms and Mysteries: A True Crime Podcast
63 min listen
The Henthorn Murders by Moms and Mysteries: A True Crime Podcast
60 min listen
La Comadre Tells Us Our Future! - Ep.72 by I.E In Besties
147 min listen
143. Dietitian Sammie Gollup on Navigating Weight Changes and Respecting Your Body by HERself
52 min listen
#267: Five Bebes is Just Perfect by Struggle Well School
75 min listen
Satiated Saturdays Episode 95: What Part of You Emotionally Eats? by Satiated Podcast
6 min listen
144 - Why kids lie: Welcome back to Voices of Your Village! Today on episode 144 of the podcast I am talking about a hot topic. Lying can be such a triggering subject for so many parents because of our own experiences in childhood and our perceptions of what it means to... by Voices of Your Village
22 min listen
Catchup/ dealing with the holiday blues by Confessions of a Rare Disease Mama
21 min listen
“Will My Kid Be Messed Up Forever?” by The Empowering Parents Podcast - Child Behavior Help The Total Transformation Way
12 min listen
“I Hate You, Mom! I Wish You Were Dead!” — How to Respond When Kids Say Hurtful Things by The Empowering Parents Podcast - Child Behavior Help The Total Transformation Way
13 min listen
50. February Q+A Pt 1 by The Motherhood Collective Co
74 min listen
Episode 28 - Birth Partners with Sallyann Beresford: In this week's episode, I talk to antenatal teacher, doula and author Sallyann Beresford about the incredibly important role of the birth partner. We talked about some of the mistakes they make, Sallyann gave her top birth partner tips and we also talked... by The Hypnobirthing Podcast
50 min listen

Discover this podcast and so much more

Our BIG news

Our BIG news

Description

Titles in the series (47)

More Episodes from Confessions of a Rare Disease Mama

Related podcast episodes