Go back two years and Sam Perkins was training for a middle distance triathlon. Just a few years before that, Sam had caught the triathlon bug and ditched his unhealthy lifestyle. But in 2019, at the age of 37, Sam was diagnosed with Motor Neurone Disease. He's wheelchair bound and needs a machine to help him breathe. According to statistics, there's a 50% chance that he has 5 months left to live.
Despite that, Sam maintains the most wonderful sense of humour and outlook on life and he's doing everything in his power to raise awareness of MND and help to raise vital funds for research into a cure, through the charity he has set up https://www.justgiving.com/crowdfunding/standagainstmnd (SAM (Stand Against Motor Neurone Disease))
You'll hear:
05:37 How Sam turned his life around after through triathlon, after being unhealthy in his 20s
14:52 Sam explains the first signs he started to notice that something wasn't quite right
37:15 Sam talks about the process of voice banking, so he can be prepared if and when the time comes that Motor Neurone Disease means he can no longer talk on his own
40:00 Sam talks about the charity, SAM (Stand Against Motor Neurone Disease) he has set up and the children's book he has written, called Lily and Sam, about a little girl Lily, whose Uncle Sam has MND. You can https://www.amazon.co.uk/Lily-Sam-Adventures-Andy-Stonehouse/dp/1916180434 (buy it here)
Tri Sharing wisdom
53:33 This week's Tri Sharing Wisdom comes from Catherine Hilton. If you have a tip to share, then get in touch with Helen or contact Inside Tri Show on social media.
Find out more about this week's guest - Sam Perkins
Sam Perkins and Stand Against MND's https://www.facebook.com/StandAgainstMND/ (fundraising page on Facebook)
Sam Perkins https://twitter.com/trisam81 (Twitter)
Stand Against MND's https://uk.virginmoneygiving.com/charity-web/charity/finalCharityHomepage.action?charityId=1018735 (Fundraising Justgiving page)
Sam's book - https://www.amazon.co.uk/Lily-Sam-Adventures-Andy-Stonehouse/dp/1916180434 (Lily and Sam on amazon)
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