Medical Crisis:What Every Caregiver Should Know: What Every Caregiver Should Know Diagnosis, Surgery, Hospital Stay, Recovery
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About this ebook
All of this changed for my wife and me when she was diagnosed with an invasive bladder cancer in early 2010. We were hit between the eyes with the shocking news. There were decisions to be made, research that needed doing, and very little time in which to accomplish it all. She would need surgery.
This book is a memoir of our experiences and the lessons that I learned through several surgeries and a prolonged hospital stay. It is written through my perspective as the primary caregiver. It will help you in your role as a caregiver. I am sure that my male perspective is apparent. However, regardless of your sex, there are lessons to be learned to help better prepare you.
The timeline of the book begins with the day of the diagnosis and ends with the recovery once we were back home after a twenty seven day stay in the hospital. During this period, I learned to be an advocate. There are important lessons here for anyone who is facing a similar situation.
I did not have any medical background prior to this experience. Both my wife and I were healthy 59 year olds. Nor did my professional life prepare me for the emotional and spiritual issues that are discus in the memoir.
My sole purpose in publishing my thoughts, feelings, and actions throughout our crisis is to help others when they are facing similar situations. Our hospital stay was prolonged and we had to deal with several mistakes that were made. I discuss them candidly, not for the reason of pointing fingers or establishing blame, but instead, because I believe that they will better prepare you, as a caregiver, for dealing with your loved ones crisis.
Like it or not, as a caregiver you have some awesome responsibilities that will definitely affect your loved ones recovery. The research you do, the connections that you make to help you advocate, the tactics you ploy to gain information, and the continual support and affection that you give, will make a difference.
This book shares all of my personal experiences with you, the reader. As you read, try not to compare your situation or my personal life with yours. Instead, try to relate to my experiences. Look for commonalities rather than differences. By doing so, I believe that you will be better prepared for logically and emotionally helping your loved one achieve a full and healthy recovery.
Although you are not the person who is ill, you will be challenged emotionally, physically, and even spiritually. The extent to which you are on guard and prepared to handle these challenges will affect the experience of your loved one. Again, this is the sole purpose of the book: to better prepare you to help you loved one get better.
I wish you and your loved one the best. You become an advocate on the day of diagnosis. From that point on, its no longer about you, its about helping your loved one get better.
Theres another old adage that says, This too shall pass. I, sincerely, wish that you crisis will pass uneventfully and successfully.
Best Wishes,
Peter G. Christie
Peter G. Christie
A Massachusetts native, Peter G. Christie has lived in the greater Boston area for his entire life. He is a dedicated foodservice professional. Having owned and operated three casual themed restaurants with his family, he turned to Association Management 23 years ago and has worked as the President and CEO of a statewide trade association representing the hospitality industry since. He is happily married to his wife, Dorene. They have two sons: Peter Jr. and Sean; a daughter in law: Liesl; and are the proud grandparents of four grandchildren: Carson, Ava, Ryan and Bennett.
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Book preview
Medical Crisis:What Every Caregiver Should Know - Peter G. Christie
Contents
Preface
Chapter One: I’ve Got Cancer
Chapter Two: Knowledge is Power
Chapter Three: Surgery
Chapter Four: The Hospital Stay: One Crisis after another
Chapter Five: Emergency Surgery
Chapter Six: Home, Sweet, Home
Chapter Seven: Man-up: It’s not about you
Chapter Eight: To Sue or Not to Sue
Chapter Nine: Conclusion
Preface
When someone gets sick, it affects those around them. The reason that I am writing this book is to give those closest to the sick person some things to think about that might be very helpful to both you and your sick relation. Whether you are a spouse, sibling, parent, child, good friend or more distant relative, the more prepared you are now, the more your loved one will benefit in the long run.
All of my opinions and observations are based upon my own personal experience in dealing with my wife’s diagnosis, hospital stay and recovery. I think that many people will have a tendency to say, Yeah, but we’re different,
or Yeah, but our hospitals and doctors are better
or any other Yeah but . . .
you can conjure up.
The truth is that my wife and I may be a bit different than you and your loved one. And, you may be at a better hospital and will be dealing with different medical personnel. However, the commonalities will be very similar.
As you read these passages, try to identify with those that make sense to you and, at the very least, don’t judge them but remain open to the possibility that you may have similar experiences. In so doing, you will be better prepared to help your loved one.
By way of background, we are both a young fifty nine years old. By that, I mean that we are more active than most people our age. My wife has worked out in some way, shape or fashion about six days per week for the past 25 years. I am less active and disciplined but still manage to work out about four or five times a week for the past fifteen years.
We are both professional. Her job is an 8:00 am to 4:00 pm in an office setting. She works hard but has relatively little stress in the workplace. My job involves a bit more of a time commitment and although it is primarily a day job, I also have many evening functions.
We were married very young in life, at age 19. We are the proud parents of two sons who are successful, grown, young men and we are the proud grandparents of four grandchildren. We live in the greater Boston area less than a half a mile away from three grandsons and a son and daughter in law. My other son and granddaughter live in Las Vegas.
Our incomes would probably put us in upper middle class. We have little debt and ample savings to provide for us during retirement. We both enjoy doing what we do. My guess is that my wife will work for a few more years and that I will work for a few more after her.
We have both been blessed with health and have had no extreme tragedies in our families. Her parents and siblings are all living. I lost my father 10 years ago but everyone else is doing fine. My wife comes from an Italian family where the kids are all close and everybody knows everybody else’s business. My family is Irish and everybody keeps pretty much to themselves.
Both of our parents were hard working. Her father was an entrepreneur. Her mother raised six children. My father was a blue collar worker who made his way to middle management and my mother was a stayed at home Mom who reared the four children in our family. My wife’s father was college educated and mine was not. They both put the needs of the family before the needs of themselves.
My wife and I enjoy our family above all other things. We are proud of our sons, love our grandchildren and daughter in law, and are at our happiest when we are all together.
In short, we are pretty normal, non-extravagant people who have worked hard, been careful with our money, and are pretty comfortable in life. The grandchildren are all that any older person has ever said they would be. Our life is, or I should say was, nearly perfect.
All of that changed one day in February of 2010. The day started out about as routine as any. I got up early to get ready for work and hit the shower first. My wife got up after I had dressed and gone done stairs. I don’t really remember if we had much to say to one another that morning other than to make a comment or two about the stories on the local news.
I may have heard her say that she was going to a doctor’s appointment or I may not have. My wife has allergies so the doctor’s office is not uncommon. Plus, she had been having a woman’s problem for the past couple of weeks that had come and gone, something about a urinary tract infection.
At any rate, she was bit later than usual getting dressed as was I because I had a meeting in a town nearby and didn’t have my norm al 20 mile commute to work. I said good bye and went to my meeting.
As coincidence will have it, or maybe it wasn’t a coincidence at all, my meeting ended around 11:00 am and I headed home to get some papers that I had forgotten as I wanted to go to work at my office for the remainder of the day.
As I entered my kitchen, my wife was standing with her back turned to me. I had forgotten about her doctor’s appointment. I asked her, What are you doing home?
With that, she turned an with a contorted face that I had never before seen, a face that was filled with sorry and fear, she broke down crying and said that words that will change our lives forever: I’ve got Cancer!
Chapter One
I’ve Got Cancer
I returned home unexpectedly from a meeting around 11:30 am one cold winter morning to pick up some papers that I had left earlier before going to a meeting in the next town. It was extremely unusual for me to be home at this time of day. Generally, I leave for my office around 6:20 am and return sometime in the early evening hours but on this particular day I had a meeting that began at 9:00 am at an office that was only about 15 minutes from home.
My wife, Dorene, also works full time. She generally goes to her office, which is