I Am Waiting for When I Forget I Have Alzheimer’s Disease: Year One

By Brian Scott Edwards M.D.

This is a different type of book on Alzheimer’s.
There are no claims on how to prevent this dementia.
There are no claims on how to cure Alzheimer’s.
In a cancer diagnosis, the patient can fight and win.
In Alzheimer’s, no one has fought and won.
Don’t fight, have fun.

The patient’s time is limited, so instead of looking for false nostrums, look on how you can improve your relationships with people and socialize.

This book is not about the futility of treating Alzheimer’s. I will leave that to the many trials that have been done. This book is about how I adjusted to the shock of the diagnosis and then went on to live the best life I possibly could.

• Language: English
• Publisher: Xlibris US
• Release date: Feb 6, 2019
• ISBN: 9781796013399

Book preview

Copyright © 2019 by Brian Scott Edwards M.D.

Library of Congress Control Number:   2019901162

ISBN:                  Hardcover                       978-1-7960-1341-2

                            Softcover                         978-1-7960-1340-5

                            eBook                              978-1-7960-1339-9

All rights reserved. No part of this book may be reproduced or transmitted in any form or by any means, electronic or mechanical, including photocopying, recording, or by any information storage and retrieval system, without permission in writing from the copyright owner.

The views expressed in this work are solely those of the author and do not necessarily reflect the views of the publisher, and the publisher hereby disclaims any responsibility for them.

Any people depicted in stock imagery provided by Getty Images are models, and such images are being used for illustrative purposes only.

Certain stock imagery © Getty Images.

Rev. date: 03/30/2019

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Dedicated to my grandson AFE

May Alzheimer’s disease not be a problem in his lifetime.

CONTENTS

Preface

Introduction

December Month One

Diagnosis made with PET Amyloid Scan

January Month Two

Started Namzaric

February Month Three

Nepal, India, Japan, Maui, Hawaii

March Month Four

Memory Clinic at KUMC Research Kansas City, KS.

April Month Five

Cataract Surgery

May Month Six

WESTIN CANAL PLACE, New Orleans

June Month Seven

SHERATON GRAND, Chicago

July Month Eight

ADN13 Trial: Month of Scans

August Month Nine

Oceania Paris river cruise to Normandy

September Month Ten

Sudden Flight to NOLA to see my first grandson born

October Month Eleven

Oceania Cruise around Cuba

November Month Twelve

Wyndham Harborside Washington DC

Epilogue

Legacy

Sequel

Afterword

PREFACE

I finally went to a neurologist on Jan. 26, 2017 to find out if I have Alzheimer’s. She asked me why bother? I persisted that I wanted to know.

My second neurologist made diagnosis of Alzheimer’s after results from PET AMYLOID SCAN came in on December 20, 2017(table two).

My memory specialist at KUMCR confirmed the diagnosis not so much on the PET AMYLOID SCAN but based on my genetic profile supporting the diagnosis on March 27, 2018.

I start the clock on YEAR ONE of Alzheimer’s in December 2017. I have already begun writing the manuscript for the next book YEAR TWO.

It’s seems I made the diagnosis very early in the disease. Thus I have only mild cognitive impairment at this point.

INTRODUCTION

1-Dog event.

A few days after I learned I had Alzheimer’s disease my wife and I were babysitting daughter’s two huge Newfoundland dogs. My wife was on the chair across from me about 3 feet away. I was sitting on the edge of the bed facing her with my legs dangling. I was softly sobbing as I tried to absorb the news of having Alzheimer’s disease two days earlier. My daughter’s dog jumped up on the bed and put his head in my lap to comfort. I rarely have been with the dog. What a sweet moment it was for me.

2- Dream event

A Life Changing Experience

5-19-18

IT’S ALL OKAY

I had a very bad day. I had a very angry argument with Luke about not being told that I had the honor to hood him at his graduation ceremony as I was a physician.

Even though we had wine in the afternoon and talked, I really had not gotten over it and I could not forgive Luke. I was in a terrible state. I still loved Luke and he has been a central component of my emotional being. My self value was linked with my love for Luke. I was miserable when I went to sleep. We