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Part Two: Community Stories of Navigating a Rare Epilepsy Diagnosis

Part Two: Community Stories of Navigating a Rare Epilepsy Diagnosis

FromBrain & Life


Part Two: Community Stories of Navigating a Rare Epilepsy Diagnosis

FromBrain & Life

ratings:
Length:
39 minutes
Released:
Jul 13, 2023
Format:
Podcast episode

Description

This week, in the second of two episodes, Dr. Daniel Correa continues the conversation from last week with families who share how SYNGAP1—a rare genetic neurologic disease that causes seizures and developmental delays—has impacted their loved ones. Neurologist Dr. Angel Aledo-Serrano returns to discuss the different types of therapies available for SYNGAP1 and how SynGap1 Research Fund helps support research for this rare condition.   Listen to Part One:   Part One: Community Stories of Navigating a Rare Epilepsy Diagnosis  Additional Resources  SynGAP Research Fund (SRF)   Brain & Life: How Parents Advocate for Their Children with Rare Diseases   Learn more about autism spectrum disorder   Learn more about epilepsy   We want to hear from you!  Have a question or want to hear a topic featured on the Brain & Life Podcast?  Record a voicemail at 612-928-6206  Email us at BLpodcast@brainandlife.org  Social Media:    Guest: SynGAP Research Fund @cureSYNGAP1 (Twitter); Dr. Angel Aledo-Serrano @AledoNeuro (Twitter) @aledoneuro (Instagram)  Host: Dr. Daniel Correa @neurodrcorrea
Released:
Jul 13, 2023
Format:
Podcast episode

Titles in the series (100)

How do you keep your brain healthy? How can you live better every day after being diagnosed with a brain condition? Brain & Life® from the American Academy of Neurology tackles those questions and more in the only podcast dedicated to exploring the intersection of brain health and neurologic disease. Each week neurologist co-hosts Dr. Daniel Correa and Dr. Audrey Nath speak with neurology experts, celebrity advocates, and people whose lives are affected by brain conditions to educate and inspire you to maintain a healthy brain and a healthy you.