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Neurofibromatosis Advocacy and Community Building with the Gilbert Family Foundation

Neurofibromatosis Advocacy and Community Building with the Gilbert Family Foundation

FromBrain & Life


Neurofibromatosis Advocacy and Community Building with the Gilbert Family Foundation

FromBrain & Life

ratings:
Length:
48 minutes
Released:
Mar 7, 2024
Format:
Podcast episode

Description

In this week’s episode, Brain & Life Podcast co-host Dr. Katy Peters discusses the Gilbert Family Foundation’s work on neurofibromatosis (NF) with their executive director, Laura Grannemann. She shares about ways they connect with the NF community, ongoing research the foundation is leading, and how anyone can get involved in advocacy work. Dr. Peters then speaks with neurologist and Director of The Johns Hopkins Comprehensive Neurofibromatosis Center, Dr. Jaishri Blakeley, about what exactly neurofibromatosis is, how it affects patients, and treatment options for all ages.   Additional Resources The Gilbert Family Foundation What is Neurofibromatosis? New Research Offers More Options to People with Neurofibromatosis Type 1   We want to hear from you! Have a question or want to hear a topic featured on the Brain & Life Podcast? ·       Record a voicemail at 612-928-6206 ·       Email us at BLpodcast@brainandlife.org   Social Media:   Guests: Laura Grannemann @gilbertfamilyfoundation; Dr. Jaishri Blakeley @hopkinsmedicine Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD
Released:
Mar 7, 2024
Format:
Podcast episode

Titles in the series (100)

How do you keep your brain healthy? How can you live better every day after being diagnosed with a brain condition? Brain & Life® from the American Academy of Neurology tackles those questions and more in the only podcast dedicated to exploring the intersection of brain health and neurologic disease. Each week neurologist co-hosts Dr. Daniel Correa and Dr. Audrey Nath speak with neurology experts, celebrity advocates, and people whose lives are affected by brain conditions to educate and inspire you to maintain a healthy brain and a healthy you.