Discover this podcast and so much more

Podcasts are free to enjoy without a subscription. We also offer ebooks, audiobooks, and so much more for just $11.99/month.

65: The Story of Cali

65: The Story of Cali

FromThe Rare Life


65: The Story of Cali

FromThe Rare Life

ratings:
Length:
34 minutes
Released:
Sep 23, 2021
Format:
Podcast episode

Description

When Falesha was 37-weeks pregnant, her doctor found a few concerning birth defects in Cali that pointed to a rare syndrome called Pfeiffer Syndrome. From there, it was a flurry of preparation for her arrival.
In this episode, Falesha shares how much their lives have changed over the 16 months of her life, and the ways she became an expert of her daughter’s syndrome to help her have the best care possible.
Links:
Check out photos of Falesha + fam on the website here.
Let’s be friends on Instagram! @the_rare_life
Follow The Rare Life podcast on Facebook.
Follow Falesha on:
Instagram, @falesha11
YouTube Channel, https://www.youtube.com/channel/UC-UdvhoZdoYouPL40cue5vg
Blog, https://www.faleshajohnson.com/
Released:
Sep 23, 2021
Format:
Podcast episode

Titles in the series (100)

This is the real, raw, and all the feels of loving a child with disabilities. Episodes feature parent-guests, professionals, and solo episodes with host Madeline Cheney. Their authentic conversations don’t shy away from the strong and mixed emotions that often accompany medically-complex parenting. Parents listen in to feel seen, validated, and receive much-needed solidarity. Professionals working with disabled people listen in to better understand what is often going on under the surface for a family living with disabilities.