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37: The Story of Lily

37: The Story of Lily

FromThe Rare Life


37: The Story of Lily

FromThe Rare Life

ratings:
Length:
33 minutes
Released:
Mar 4, 2021
Format:
Podcast episode

Description

Not every twin has a living sibling—and Lily is an example of this tragic phenomenon. Her sister known as Autumn passed away at 24-weeks gestation, and she was born a few days later. In this episode, mom Jess shares the pain of losing a child and of the struggles that Lily has had because of her premature birth.
Lily has a tracheostomy, is G-tube fed, and has damaged lungs due to her intubation during her 256-day NICU stay as she fought for her life. Lily almost died several times during her stay, but one time in particular has really stuck with her.
Jess also opens up about the guilt she holds because of the clotting disorders which ultimately led to A’s death and Lily’s prematurity.

Links:
Follow Jess here: https://www.instagram.com/lilyslittlelungs/
Follow me here: https://www.instagram.com/the_rare_life/
Answer this month’s question here: https://therarelifepodcast.com/
Still Apart of Us, a Podcast about Stillbirth and Infant Loss: https://stillapartofus.com/
Released:
Mar 4, 2021
Format:
Podcast episode

Titles in the series (100)

This is the real, raw, and all the feels of loving a child with disabilities. Episodes feature parent-guests, professionals, and solo episodes with host Madeline Cheney. Their authentic conversations don’t shy away from the strong and mixed emotions that often accompany medically-complex parenting. Parents listen in to feel seen, validated, and receive much-needed solidarity. Professionals working with disabled people listen in to better understand what is often going on under the surface for a family living with disabilities.