Discover this podcast and so much more

Podcasts are free to enjoy without a subscription. We also offer ebooks, audiobooks, and so much more for just $11.99/month.

27: The Story of Gilbert

27: The Story of Gilbert

FromThe Rare Life


27: The Story of Gilbert

FromThe Rare Life

ratings:
Length:
34 minutes
Released:
Dec 17, 2020
Format:
Podcast episode

Description

When Ghillie was born at 25 weeks, Anna and her husband thought their biggest hurdle would be his micro preemie size and lungs. It wasn’t until after he was examined in the NICU that they learned about his in-utero brain injury which has life-long affects.
In this episode, Anna shares Gilbert’s birth and agonizing NICU stay during which it was suggested they remove him from life-support, hugely triggering to their tragic past with child death.
She also shares the way she has found her voice in public as they receive stares and ignorant comments in response to his extensive medical equipment.

Link to Flintstones Hearing Loss Simulation: https://www.youtube.com/watch?v=Va1wrnsMve0
Anna’s Instagram account: https://www.instagram.com/anna.margarets/
BetterHelp affiliate link: https://www.betterhelp.com/therarelife
Released:
Dec 17, 2020
Format:
Podcast episode

Titles in the series (100)

This is the real, raw, and all the feels of loving a child with disabilities. Episodes feature parent-guests, professionals, and solo episodes with host Madeline Cheney. Their authentic conversations don’t shy away from the strong and mixed emotions that often accompany medically-complex parenting. Parents listen in to feel seen, validated, and receive much-needed solidarity. Professionals working with disabled people listen in to better understand what is often going on under the surface for a family living with disabilities.