31 min listen
THE MS CAREGIVER: Navigating this Critical Role with Realistic Expectations and Grace
THE MS CAREGIVER: Navigating this Critical Role with Realistic Expectations and Grace
ratings:
Length:
37 minutes
Released:
Oct 16, 2019
Format:
Podcast episode
Description
EPISODE NOTES:
The evolution of the amount of care required over time
Failing drugs, failing health
When doctors don't acknowledge caregiver input
Preserving the patient's dignity
Being a spouse and a carer
The price a carer can pay if they don't tend to their own healthcare needs
Never underestimate how stress can affect a caregiver's wellbeing
You can't care for the patient if you don't care for yourself
Home modifications to make life easier for the patient and the caregiver
When your home feels like a medical facility
Handling a patient who has bouts of anger or lashes out
The Mirror Theory
Not taking a patient's behavior personally
The importance of support groups
Explaining your situation to family and friends
How to approach a child about a parent's illness
How organization is the key to your sanity
Utilizing white boards and diaries
Don't panic. Get help.
Planning for the future when your partner has a chronic illness
Don't stop planning for the future. Plan differently.
Don't lose yourself. Ask for help. You are not alone.
LINKS:
MS Caregiver Support Group
Aaron and PPMS
The MS Gym
Brooke Slick
The evolution of the amount of care required over time
Failing drugs, failing health
When doctors don't acknowledge caregiver input
Preserving the patient's dignity
Being a spouse and a carer
The price a carer can pay if they don't tend to their own healthcare needs
Never underestimate how stress can affect a caregiver's wellbeing
You can't care for the patient if you don't care for yourself
Home modifications to make life easier for the patient and the caregiver
When your home feels like a medical facility
Handling a patient who has bouts of anger or lashes out
The Mirror Theory
Not taking a patient's behavior personally
The importance of support groups
Explaining your situation to family and friends
How to approach a child about a parent's illness
How organization is the key to your sanity
Utilizing white boards and diaries
Don't panic. Get help.
Planning for the future when your partner has a chronic illness
Don't stop planning for the future. Plan differently.
Don't lose yourself. Ask for help. You are not alone.
LINKS:
MS Caregiver Support Group
Aaron and PPMS
The MS Gym
Brooke Slick
Released:
Oct 16, 2019
Format:
Podcast episode
Titles in the series (100)
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