Ebook454 pages11 hours
Alone in My Universe: Struggling with an Orphan Disease in an Unsympathetic World
Rating: 0 out of 5 stars
()
About this ebook
Battling a chronic disease can often be a lonely and frustrating ordeal. It doesnt have to be. Alone in My Universe, compiled by Wayne Brown, presents a series of writings from patients suffering from acromegaly. Based on actual personal experiences, these narratives provide a primer of understanding for others dealing with this chronic, debilitating disease that affects many of the bodys systems.
This collaborative effort, written by real people touched by acromegaly, attempts to raise awareness of this low-profile disease. Each patient tells his or her story as it relates to the disease and its complications. Topics include the following:
Handling pre-diagnosis frustration
Dealing with fears of medical treatment and surgery
Managing family issues and work issues
Talking with children
Managing negative energy
Coping with good and bad days
Living life each day
With sympathy, empathy, and mutual support, Alone in the Universe shares the heartfelt stories of those suffering from acromegaly to show others that they are not alone in their battle.
This collaborative effort, written by real people touched by acromegaly, attempts to raise awareness of this low-profile disease. Each patient tells his or her story as it relates to the disease and its complications. Topics include the following:
Handling pre-diagnosis frustration
Dealing with fears of medical treatment and surgery
Managing family issues and work issues
Talking with children
Managing negative energy
Coping with good and bad days
Living life each day
With sympathy, empathy, and mutual support, Alone in the Universe shares the heartfelt stories of those suffering from acromegaly to show others that they are not alone in their battle.
Author
Ayaka Nangumo
Wayne Brown was diagnosed with acromegaly in 2004 and is the founder of Acromegaly Community, Inc. He serves as a patient advisor to several medical companies. Brown lives in Buffalo, New York, where he works to support people around the world every day. Visit him online at www.AcromegalyCommunity.com.
Related to Alone in My Universe
Related ebooks
User's Guide to Natural Hormone Replacement: Learn How Safe Dietary & Herbal Supplements Can Ease Your Midlife Changes. Rating: 0 out of 5 stars0 ratingsUser's Guide to Women's Health Supplements Rating: 0 out of 5 stars0 ratingsThe Good News About Estrogen: The Truth Behind a Powerhouse Hormone Rating: 0 out of 5 stars0 ratingsManaging Menopause Naturally: Before, During, and Forever Rating: 0 out of 5 stars0 ratingsThe Menopause Cure: Hormonal Health Rating: 0 out of 5 stars0 ratingsThyroid Problems in Women and Children: Self-Help and Treatment Rating: 4 out of 5 stars4/5Health Briefs & Holistic Hints: GTH Series, #1 Rating: 0 out of 5 stars0 ratingsYou Are What You Secrete: A Practical Guide to Common, Hormone-Related Diseases Rating: 0 out of 5 stars0 ratingsLifting the Veil of Menopause: A Natural Solution Rating: 0 out of 5 stars0 ratingsMenopause: Advice from a Pro to Reduce Symptoms Rating: 0 out of 5 stars0 ratingsThe Thyroid Hormone Breakthrough: Overcoming Sexual and Hormonal Problems at Every Age Rating: 5 out of 5 stars5/5The Thyroid Paradox: How to Get the Best Care for Hypothyroidism Rating: 0 out of 5 stars0 ratingsThe Thyroid, Cancer and You: Knowledge Is Power! How Much Do You Know? Rating: 0 out of 5 stars0 ratingsBeware of Your Doctor: How to Survive the Medical System Rating: 0 out of 5 stars0 ratingsMigraines and Epilepsy: How to Find Relief, Live Well and Protect Your Brain Rating: 0 out of 5 stars0 ratingsGraves Disease Demystified Doctors Secret Guide Rating: 0 out of 5 stars0 ratingsWhat's Missing from Medicine: Six Lifestyle Changes to Overcome Chronic Illness Rating: 5 out of 5 stars5/5Relax, This Won't Hurt: Painless Answers to Women's Most Pressing Health Questions Rating: 4 out of 5 stars4/5Androgen Disorders in Women: The Most Neglected Hormone Problem Rating: 0 out of 5 stars0 ratingsCoping with Prednisone, Revised and Updated: (*and Other Cortisone-Related Medicines) Rating: 4 out of 5 stars4/5Hazing Aging: How Capillary Endothelia Control Inflammation and Aging Rating: 0 out of 5 stars0 ratingsPrevent Alzheimer's in Just 10 Minutes a Day: With the Bodyenergy Prescription and Craniosacral Therapy Rating: 0 out of 5 stars0 ratingsUser's Guide to Easing Menopause Symptoms Naturally Rating: 0 out of 5 stars0 ratingsTrust Your Gut: Get Lasting Healing from IBS and Other Chronic Digestive Problems Without Drugs Rating: 4 out of 5 stars4/5Fibromyalgia: A Simple Step by Step Breakdown: Natural Treatment Protocols Toward Ultimate Remission. Rating: 0 out of 5 stars0 ratingsCancer: The Journey from Diagnosis to Empowerment Rating: 0 out of 5 stars0 ratingsAcromegaly, A Simple Guide To The Condition, Diagnosis, Treatment And Related Conditions Rating: 0 out of 5 stars0 ratingsDestined for Disease: How I Cured All My Fibromyalgia Symptoms Rating: 0 out of 5 stars0 ratingsA Simple Guide to Parathyroid Cancer, Diagnosis, Treatment and Related Conditions Rating: 0 out of 5 stars0 ratings
Reviews for Alone in My Universe
Rating: 0 out of 5 stars
0 ratings
0 ratings0 reviews
Book preview
Alone in My Universe - Ayaka Nangumo
QNa book_preview_excerpt.html }َGx SKQ
ʜY""|P>_{#n]]'_|>x}>|W|իK_?y<.C*Qu30J^!.)870W×pGT?Nz!閳]=ߛ;cW26\>𣏪m[XTƹ|lj;wU.6Vj8N^d~6acT;tq'jvȊvRcɧ0;?pC{}s#=Q&އ.;2Xfc_5ӄqA:-۶q/x|ݖg}2nbF*XE%;8j}̓
~{e?Cp
aU?`^Z
2_}l8_Gy#1O|O}|>4t:yhŃM?'ӟ>=¢í/}Da^yý?ǭc-G=EH7dݐrΨAhEq",0O!è5
mz%@N~/D'q'DxM(P7Ӯ
M7q;7m#W6yFOn֥U
xcZE#6_cP6ɗQ3m#QcM.?d{14pZ_ m
7_~^}??'gӏzr=$Ǟ'v>٧Փ˅ 3J4~jK'?ŵ+
dFC$Q(
F,v?^.~XA[Scy$t8}ޭfNt%( װLL"!|]}'JojM"1Nzd[pbZ|eCqz?"i&
h澶?Slّ8*jҽ v.
S#;vO)
L0q2( qr_iXv:["jܵP^xɦ
ExGT}Y݄C?Ln˷q8sykŠocf!zضMzU#;R]y,#E{~F۷Xwl|[}/..TE,pݏnHt=Cعޮړ}S^2R/1]\
: -}\dMM˜0wM/BCϱü7QdXٕ]ưY{niV:TuWK¾:6
%AD$-/_qUͻ!^>wވ58@_.;Wێu*rE=Wokz[ŗ9|!M1_|7uu(-}VpTqNBŏ76!s9OD)MG YA,#vD@b106N'r"ZS0>PkC^7;bV]
sČ4gtT+ÖFh݈ۑ,]Mb֊iӨ3Rr8}
XK%o3W~=4o!9f{QF+`lS)AҢ96n%дIrܵb4Ak QNɂRpOo.fEH]F|ac6۰@
'ˉSQ50&$?.'Ej;43,^ܤds$pJgl
"#&}a'Bc+TϷ"Z0;I a~#Ogz
[؉[xCD3f2OLZfmmf1 ҳ{/ð2
r^f_lZu(klIPf%sh WO#az⫷/7
>(
5ǒIFĞ1(` f8(]? Ë]7oD]d]Eb+"
!V:7VS
>9-ӕ!ihUJX:yol54?Lz1~ۧbL?ZN4PsX
Jm~I䁸#'/J:wWm^ٺ^(\FY4]G%#d{b\*bid" 54WDLܛpڼov1(mo$#oⲮ.m32d
RMٯ$qöq)"w*qIlPH$E'EZ̔Eꁥ T-܅2( whb- ^;R߈Lک:M
yB,*fyT<|m@M> QlllJ XF>Ӻul4MhïCD(Ճ~XvV(~#oMn𤻤+}/l]qL
k
ZN?ln`p<G x2V;}^s7a)`[0ՏB4-r7j#a}WgCltï~{?#jׁk&&u3ibT2 DֽW e[F5C[U1^1T JG e{c
.4lǶ4'X8SWaM8҆tg)r&@>au~LA5/;CS؉{]l$ V^ԝ)09)*S
(Q:ua8m`1`x|c4Ik3p^FDfKW'ӫZCc/{.x^,r41wt,+5):E!'' e .sxо=kc2_B$DCԇ(OEd`!ᶎ%2LY,dw!*kd3)gݣGTa[FEP'YFձ
/rBz]D
eHa5OG'-^v㝕(aǦet_ 3(Fs7lԞMӀ_ ~4
Gu7