Suffering the Silence: Chronic Lyme Disease in an Age of Denial
Written by Bernard Raxlen and Allie Cashel
Narrated by Mandy Kaplan
()
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About this audiobook
In the United States alone, at least 300,000 people are diagnosed with Lyme disease each year, and it is estimated that 20 percent of them go on to develop chronic symptoms of the disease, including (but not limited to) muscle and joint pain; digestive problems; extreme fatigue, confusion, and dizziness; sensations of burning and numbness; and immune-system dysfunction. Before reaching a final diagnosis, many of these patients are misdiagnosed with diseases and conditions like lupus, multiple sclerosis, fibromyalgia, chronic fatigue syndrome, depression, anxiety, and even dementia. Despite these numbers and routine misdiagnoses, The Centers for Disease Control and Prevention (CDC) and Infectious Diseases Society of America (IDSA) claim it is impossible for the Lyme bacteria to survive in the body after standard antibiotic therapy. For these chronic patients who have their suffering routinely dismissed by doctors—and even family and friends—the social effects of the illness can be as crippling as the disease itself.
Suffering the Silence is a personal and provocative call to break the stigma and ignorance that currently surrounds chronic Lyme disease and other misunderstood chronic illnesses—but it is also a message of hope and comfort for Lyme sufferers, encouraging them to share their stories, seek out treatment, and remember that they are not alone.
Bernard Raxlen
Dr Bernard Raxlen MD specialises in neuropsychiatry and neurocognitive complications. Over the past 30 years, he has successfully treated over 6500 cases of tick-borne disease and today over 90% of his practice is devoted to chronic Lyme disease (CLD) and co-infections. He was an original member and co-founder of AIMS (Academy for Integrated Medical Studies) and served for several years on the Board of Directors of the Omega Institute. He is founding member and secretary of the board of governors of ILADS (the International Lyme and Associated Disease Society) and also is serving as the chairman of its Ethics Committee. He was awarded the Humanitarian Award by the Turn the Corner Foundation, and has been a featured speaker in more than 40 workshops over the years on topics ranging from psychiatry, drug abuse, psychoneuroimmunology and tick-borne diseases. He has been on US national television (ABC, NBC, Fox) discussing medical concerns pertaining to TBD and is featured on the Discovery Channel in the Mystery Illness discussing Lyme disease.
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