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Understanding and Acceptance: Being an Active Partner in Your CIDP Treatment

Understanding and Acceptance: Being an Active Partner in Your CIDP Treatment

FromUntold Stories: Life with a Severe Autoimmune Condition


Understanding and Acceptance: Being an Active Partner in Your CIDP Treatment

FromUntold Stories: Life with a Severe Autoimmune Condition

ratings:
Length:
33 minutes
Released:
Jan 17, 2024
Format:
Podcast episode

Description

As a successful and resilient attorney, Rorey was blindsided by the onset of debilitating muscle weakness and fatigue. After months of countless tests, he found a sense of relief when doctors diagnosed him with chronic inflammatory demyelinating polyneuropathy (CIDP). He navigated the complications of a condition that is not always visible or understood by others. Looking to be an active partner in his treatment, Rorey used his analytical skills to do research and find ways to manage his condition. With family support and an amazing healthcare team, he cultivated grace and acceptance for his condition. Learning to not only manage his physical limitations, Rorey has also found a new perspective on his overall health and overcoming challenges through his CIDP journey.See omnystudio.com/listener for privacy information.
Released:
Jan 17, 2024
Format:
Podcast episode

Titles in the series (12)

For people diagnosed with a rare, autoimmune condition like myasthenia gravis (MG) or chronic inflammatory demyelinating polyneuropathy (CIDP), life can change in the blink of an eye. But these conditions affect everyone differently, and each person has a story to tell. Welcome to “Untold Stories: Life with a Severe Autoimmune Condition,” a Ruby Studio from iHeart Media production in partnership with argenx. Host Martine Hackett has real, eye-opening conversations with people living with rare, autoimmune conditions ranging from MG and CIDP to Pemphigus. Learn about the hardships of diagnosis and each person’s journey towards wellness. Understand the challenges they continue to overcome as they discover how to live with these conditions and persevere through the tough times. Plus, hear from the family members and friends who stand by them every day and play important roles in their care.