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Untold Stories: Life with a Severe Autoimmune Condition

Untold Stories: Life with a Severe Autoimmune Condition


Untold Stories: Life with a Severe Autoimmune Condition

ratings:
Length:
12 episodes
Language:
English
Format:
Podcast

Description

For people diagnosed with a rare, autoimmune condition like myasthenia gravis (MG) or chronic inflammatory demyelinating polyneuropathy (CIDP), life can change in the blink of an eye. But these conditions affect everyone differently, and each person has a story to tell. Welcome to “Untold Stories: Life with a Severe Autoimmune Condition,” a Ruby Studio from iHeart Media production in partnership with argenx. Host Martine Hackett has real, eye-opening conversations with people living with rare, autoimmune conditions ranging from MG to CIDP. Learn about the hardships of diagnosis and each person’s journey towards wellness. Understand the challenges they continue to overcome as they discover how to live with these conditions and persevere through the tough times. Plus, hear from the family members and friends who stand by them every day and play important roles in their care.
Language:
English
Format:
Podcast

Episodes1 - 10 of 12 episodes

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Finding Your Pace: Building New Boundaries with MG

Raymond, a retired designer, lived with HIV for 40 years before the onset of his myasth...

29 minutes
Feb 14, 2024

Behind the Seams: Unraveling and Restitching Life with MG

Jacqueline, also known as Jacq, lived in New York City with big dreams of succeeding in...

34 minutes
Jan 31, 2024

Understanding and Acceptance: Being an Active Partner in Your CIDP Treatment

As a successful and resilient attorney, Rorey was blindsided by the onset of debilitati...

33 minutes
Jan 17, 2024

Prioritizing Care: Confronting Postpartum with MG

Nicole is an epidemiologist whose life took an unexpected turn with an MG diagnosis bet...

32 minutes
Dec 27, 2023

Untold Stories is Back!

Martine Hackett returns with a new season of “Untold Stories: Life with a Severe Autoim...

1 minute
Dec 13, 2023

Accessing Ambition: Professional Success While Living with MG

While myasthenia gravis, or MG, can make navigating everyday tasks more difficult, it d...

30 minutes
Aug 16, 2023

Body & Spirit: Finding Respite Despite MG

Managing life with a rare disease like myasthenia gravis, or MG, can challenge the way ...

27 minutes
Aug 02, 2023

Leading with Love: Thriving in Marriage While Living with MG

Myasthenia gravis, or MG, takes a toll on the lives of those living with the condition,...

29 minutes
Jul 19, 2023

Bonus Episode: The Realities of Life with CIDP

In this special bonus episode, we’ll spotlight one of the many rare conditions that des...

26 minutes
Jul 12, 2023

Building Community: Navigating Young Adulthood with MG

Myasthenia gravis, or MG, affects people of all ages and races and is most commonly dia...

31 minutes
Jul 05, 2023