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Connecting to Care: The Importance of Self-Advocacy with MG

Connecting to Care: The Importance of Self-Advocacy with MG

FromUntold Stories: Life with a Severe Autoimmune Condition


Connecting to Care: The Importance of Self-Advocacy with MG

FromUntold Stories: Life with a Severe Autoimmune Condition

ratings:
Length:
28 minutes
Released:
Jun 21, 2023
Format:
Podcast episode

Description

Navigating life with myasthenia gravis, or MG, often begins with a long road to diagnosis. For disabled veteran Shawna, the search for answers to her debilitating symptoms took several years. With the highs and lows of assistance from Veterans Affairs, she learned to navigate the healthcare system and make her voice heard, all while maintaining a positive outlook on her life with MG. Together with her caregiver and husband, Justin, Shawna has helped inspire the greater MG community with their blog, In Sickness and Nevermind, and redefined success for her own MG journey.See omnystudio.com/listener for privacy information.
Released:
Jun 21, 2023
Format:
Podcast episode

Titles in the series (12)

For people diagnosed with a rare, autoimmune condition like myasthenia gravis (MG) or chronic inflammatory demyelinating polyneuropathy (CIDP), life can change in the blink of an eye. But these conditions affect everyone differently, and each person has a story to tell. Welcome to “Untold Stories: Life with a Severe Autoimmune Condition,” a Ruby Studio from iHeart Media production in partnership with argenx. Host Martine Hackett has real, eye-opening conversations with people living with rare, autoimmune conditions ranging from MG and CIDP to Pemphigus. Learn about the hardships of diagnosis and each person’s journey towards wellness. Understand the challenges they continue to overcome as they discover how to live with these conditions and persevere through the tough times. Plus, hear from the family members and friends who stand by them every day and play important roles in their care.