Show Notes:
In Episode 9, Ashley talks with SYNGAP1 Mom & SRF Operations Mgr. Lauren Perry. These two talk about Lauren’s  2 teenage sons, including Will, diagnosed in 2016, seizures, and Will’s recent successful VNS replacement surgery. They also chat about his typical day, markers, and pride in the SRF community.
Will’s Warrior Story
VNS Therapy
Follow Lauren:
  Twitter  
Email:  lauren@curesyngap1.org
Follow ⁠⁠⁠⁠Ashley Frye⁠⁠⁠⁠:
⁠⁠⁠⁠LinkedIn⁠⁠⁠⁠
⁠Facebook⁠
⁠⁠⁠⁠Instagram⁠⁠⁠⁠
Nathan’s Warrior Story
SYNGAP1 Stories ⁠Episode 001⁠ - Ashley Frye
SYNGAP1 Stories ⁠Episode 005⁠ - Panda
Panda’s News Story:  ⁠Nathan’s Dog⁠
SRF & SYNGAP1 Info:⁠
What is SYNGAP1? ⁠
Syngap Research Fund
Donate: ⁠⁠⁠https://Syngap.Fund/Donate⁠⁠⁠
SYNGAP1 & Epilepsy⁠⁠⁠
Why Getting a Genetic Diagnosis Matters⁠⁠⁠
How to Get Free Genetic Testing⁠⁠⁠
⁠⁠⁠ Special Needs Trusts⁠⁠⁠
Connect with SRF (@curesyngap1):
  ⁠⁠⁠Facebook⁠⁠⁠
  ⁠⁠⁠Twitter⁠⁠⁠
  ⁠⁠⁠Instagram⁠⁠⁠
  ⁠⁠⁠LinkedIn⁠⁠⁠
  ⁠⁠⁠TikTok⁠⁠⁠
  ⁠⁠⁠SYNGAP10 Weekly Video Podcast⁠⁠⁠ w/ Mike
SYNGAP1 Conference 2023, hosted by SRF - ⁠⁠Hotel Reservations⁠⁠
Wednesday SRF Family Zoom Meeting:
⁠⁠⁠Syngap.Fund/SRFfam⁠⁠⁠ Meeting ID - 972 0059 2178 Passcode - 848417
Comments: ed@curesyngap1.org
Music: ⁠⁠⁠In the Forest... by Lesfm from Pixabay ⁠⁠
Episode 009 SYNGAP1 Stories, May 30, 2023
#SYNGAP1storiesWill #Syngap #SYNGAP1 #SYNGAP1Stories #VNStherapy #epilepsy #autism #intellectualdisability #id #anxiety #raredisease #epilepsyawareness #autismawareness #rarediseaseresearch #SynGAPResearchFund #CareAboutRare #PatientAdvocacy #GCchat #Neurology