Show Notes:
In Episode 8, Ashley talks with SYNGAP1 Mom Heather Bensch, whose daughter McKaela was diagnosed in her 20s. Heather talks about her struggles getting a diagnosis as well as the joys of raising McKaela. Heather is a certified life coach working with and advocating for the special needs community.
McKaela’s Warrior Story
McKaela’s Spark for Autism Story
McKaela’s Facebook Blog
A Sister’s Promise - a post to McKaela from her sister Plum
Follow Heather:
Facebook
Instagram
Twitter
TikTok
Pinterest
Heather’s Business (Except Defeat Life Coaching) Links:
  Email:  exceptdefeatlifecoaching@gmail.com
Phone: 731/612-8083
Website
Facebook
Grief and Resilience with our SRF Patient Advocacy Group, co-written by Heather
Follow ⁠⁠⁠⁠Ashley Frye⁠⁠⁠⁠:
⁠⁠⁠⁠LinkedIn⁠⁠⁠⁠
⁠Facebook⁠
⁠⁠⁠⁠Instagram⁠⁠⁠⁠
Nathan’s Warrior Story
SYNGAP1 Stories ⁠Episode 001⁠ - Ashley Frye
SYNGAP1 Stories ⁠Episode 005⁠ - Panda
Panda’s News Story:  ⁠Nathan’s Dog⁠
SRF & SYNGAP1 Info:⁠
What is SYNGAP1? ⁠
Syngap Research Fund
Donate: ⁠⁠⁠https://Syngap.Fund/Donate⁠⁠⁠
SYNGAP1 & Epilepsy⁠⁠⁠
Why Getting a Genetic Diagnosis Matters⁠⁠⁠
How to Get Free Genetic Testing⁠⁠⁠
⁠⁠⁠ Special Needs Trusts⁠⁠⁠
Connect with SRF (@curesyngap1):
  ⁠⁠⁠Facebook⁠⁠⁠
  ⁠⁠⁠Twitter⁠⁠⁠
  ⁠⁠⁠Instagram⁠⁠⁠
  ⁠⁠⁠LinkedIn⁠⁠⁠
  ⁠⁠⁠TikTok⁠⁠⁠
  ⁠⁠⁠SYNGAP10 Weekly Video Podcast⁠⁠⁠ w/ Mike
SYNGAP1 Conference 2023, hosted by SRF - ⁠⁠Hotel Reservations⁠⁠
Wednesday SRF Family Zoom Meeting:
⁠⁠⁠Syngap.Fund/SRFfam⁠⁠⁠ Meeting ID - 972 0059 2178 Passcode - 848417
Comments: ed@curesyngap1.org
Music: ⁠⁠⁠In the Forest... by Lesfm from Pixabay ⁠⁠
Episode 008 SYNGAP1 Stories, May 16, 2023
#SYNGAP1StoriesMcKaela #Syngap #SYNGAP1 #SYNGAP1Stories #epilepsy #autism #intellectualdisability #id #anxiety #raredisease #epilepsyawareness #autismawareness #rarediseaseresearch #SynGAPResearchFund #CareAboutRare #PatientAdvocacy #GCchat #Neurology