29 min listen
Ashley's Guest - SRF Community Activation Leader Corey Baysden
FromSYNGAP1 Stories
ratings:
Length:
34 minutes
Released:
Mar 7, 2023
Format:
Podcast episode
Description
Show Notes:
In Episode 3, Ashley talks with SYNGAP1 Mom Corey Baysden. Corey talks about the joys of raising Saylor as well dealing with a difficult diagnosis and finding a community in SRF. As SRF Community Activation Leader, Corey communicates with and advocates for many newly diagnosed families. You can reach her at corey@syngapresearchfund.org.
Saylor’s Warrior Story: https://www.syngapresearchfund.org/syngap-warrior/saylor
Follow Corey Baysden:
Facebook
LinkedIn
Instagram
Twitter
What is SYNGAP1: https://www.syngapresearchfund.org/home/what-is-syngap1
Syngap Research Fund: https://www.syngapresearchfund.org/
Donate: https://Syngap.Fund/Donate
SYNGAP1 & Epilepsy
Why Getting a Genetic Diagnosis Matters
How to Get Free Genetic Testing
Special Needs Trusts
Connect with SRF (@curesyngap1):
Facebook
Twitter
Instagram
LinkedIn
TikTok
SYNGAP10 Weekly Video Podcast w/ Mike
Follow Ashley Frye:
Facebook
LinkedIn
Instagram
Nathan’s Warrior Story: https://www.syngapresearchfund.org/syngap-warrior/nathan
Wednesday SRF Family Zoom Meeting:
Syngap.Fund/SRFfam Meeting ID - 972 0059 2178 Passcode - 848417
Comments: ed@syngapresearchfund.org
Music: In the Forest... by Lesfm from Pixabay
Episode 003 SynGAP Stories, March 7, 2023
#Syngap #SYNGAP1 #epilepsy #autism #raredisease
In Episode 3, Ashley talks with SYNGAP1 Mom Corey Baysden. Corey talks about the joys of raising Saylor as well dealing with a difficult diagnosis and finding a community in SRF. As SRF Community Activation Leader, Corey communicates with and advocates for many newly diagnosed families. You can reach her at corey@syngapresearchfund.org.
Saylor’s Warrior Story: https://www.syngapresearchfund.org/syngap-warrior/saylor
Follow Corey Baysden:
What is SYNGAP1: https://www.syngapresearchfund.org/home/what-is-syngap1
Syngap Research Fund: https://www.syngapresearchfund.org/
Donate: https://Syngap.Fund/Donate
SYNGAP1 & Epilepsy
Why Getting a Genetic Diagnosis Matters
How to Get Free Genetic Testing
Special Needs Trusts
Connect with SRF (@curesyngap1):
TikTok
SYNGAP10 Weekly Video Podcast w/ Mike
Follow Ashley Frye:
Nathan’s Warrior Story: https://www.syngapresearchfund.org/syngap-warrior/nathan
Wednesday SRF Family Zoom Meeting:
Syngap.Fund/SRFfam Meeting ID - 972 0059 2178 Passcode - 848417
Comments: ed@syngapresearchfund.org
Music: In the Forest... by Lesfm from Pixabay
Episode 003 SynGAP Stories, March 7, 2023
#Syngap #SYNGAP1 #epilepsy #autism #raredisease
Released:
Mar 7, 2023
Format:
Podcast episode
Titles in the series (29)
Our Host - Ashley Frye tells her family's SYNGAP1 Story by SYNGAP1 Stories