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Ashley's Guest - SRF Community Activation Leader Corey Baysden

Ashley's Guest - SRF Community Activation Leader Corey Baysden

FromSYNGAP1 Stories


Ashley's Guest - SRF Community Activation Leader Corey Baysden

FromSYNGAP1 Stories

ratings:
Length:
34 minutes
Released:
Mar 7, 2023
Format:
Podcast episode

Description

Show Notes:
In Episode 3, Ashley talks with SYNGAP1 Mom Corey Baysden. Corey talks about the joys of raising Saylor as well dealing with a difficult diagnosis and finding a community in SRF. As SRF Community Activation Leader, Corey communicates with and advocates for many newly diagnosed families. You can reach her at corey@syngapresearchfund.org.
Saylor’s Warrior Story:  https://www.syngapresearchfund.org/syngap-warrior/saylor
Follow Corey Baysden:
  Facebook
  LinkedIn
  Instagram
  Twitter
What is SYNGAP1: https://www.syngapresearchfund.org/home/what-is-syngap1
Syngap Research Fund: https://www.syngapresearchfund.org/
Donate: https://Syngap.Fund/Donate
SYNGAP1 & Epilepsy
Why Getting a Genetic Diagnosis Matters
How to Get Free Genetic Testing
Special Needs Trusts
Connect with SRF (@curesyngap1):
  Facebook
  Twitter
  Instagram
  LinkedIn
  TikTok
  SYNGAP10 Weekly Video Podcast w/ Mike
Follow Ashley Frye:
  Facebook
  LinkedIn
  Instagram
Nathan’s Warrior Story: https://www.syngapresearchfund.org/syngap-warrior/nathan
Wednesday SRF Family Zoom Meeting:
Syngap.Fund/SRFfam Meeting ID - 972 0059 2178 Passcode - 848417
Comments: ed@syngapresearchfund.org
Music: In the Forest... by Lesfm from Pixabay 
Episode 003 SynGAP Stories, March 7, 2023
#Syngap #SYNGAP1 #epilepsy #autism #raredisease
Released:
Mar 7, 2023
Format:
Podcast episode

Titles in the series (29)

SYNGAP1 is a rare disease that affects Ashley Frye's son Nathan. As of January 1, 2024, there are 1,339 people in the world diagnosed with SYNGAP1. There is no treatment. There is no cure. In each episode of SYNGAP1 Stories, Ashley will chat with SynGap parents, volunteers, caregivers, researchers, and partners about their journey with SYNGAP1 in their lives. Their joys and successes, as well as heartaches and advice, will be discussed in this heart-warming series as we support the SynGap community. #841128