10 min listen
Keep growing our community, we need each other!
Keep growing our community, we need each other!
ratings:
Length:
10 minutes
Released:
Sep 24, 2021
Format:
Podcast episode
Description
- Correction: Last week, reminder, we are here to clear the path for whomever wins, we don't care who wins we want this race to be won and easier to finish for everyone.
- Big thought: Complex Population, about to get more complex, "Post-Intervention"
- Sign up for Ciitizen: https://www.ciitizen.com/syngap1/
- Remember that Duke presentation, here it is: https://www.syngapresearchfund.org/post/combinedbrain-duke-university-team-up-to-receive-a-prestigious-fda-grant/
- Next week, lets' get connected Global Genes Conference https://globalgenes.org/event/rare-patient-advocacy-summit/
- Simons Searchlight in Spanish, English is still being scheduled: https://syngap.fund/SimonsSearchlight/
- Interesting paper on #SYNGAP1 and Sleep, the best part is the suggestion at the end to use this for a clinical endpoint! https://twitter.com/cureSYNGAP1/status/1439825860245090306?s=20
- Not Alone Coloring Book! https://syngap.fund/notalone
- Cannonball 11 DAYS . 3 dads driving across the US https://syngap.fund/cball #UFDcure
- Go to the GALA! 29 DAYS! https://syngap.fund/gala
- Easy to do https://syngap.fund/GNP
- Donate to our current effort for Clinical Trial Readiness https://Syngap.Fund/CTR
- Sign up for this #podcast #SYNGAP10 here https://syngap.fund/10
- What is #SYNGAP1? https://www.syngapresearchfund.org/home/what-is-syngap1
This was Episode 28 of #Syngap10 - September 24th, 2021
#F78A1 #ICD10 #Syngap #epilepsy #autism #intellectualdisability #id #raredisease #epilepsyawareness #autismawareness #rarediseaseresearch #SynGAPResearchFund #CareAboutRare #PatientAdvocacy #GCchat #Neurology #Genetics #Pediatrics
- Big thought: Complex Population, about to get more complex, "Post-Intervention"
- Sign up for Ciitizen: https://www.ciitizen.com/syngap1/
- Remember that Duke presentation, here it is: https://www.syngapresearchfund.org/post/combinedbrain-duke-university-team-up-to-receive-a-prestigious-fda-grant/
- Next week, lets' get connected Global Genes Conference https://globalgenes.org/event/rare-patient-advocacy-summit/
- Simons Searchlight in Spanish, English is still being scheduled: https://syngap.fund/SimonsSearchlight/
- Interesting paper on #SYNGAP1 and Sleep, the best part is the suggestion at the end to use this for a clinical endpoint! https://twitter.com/cureSYNGAP1/status/1439825860245090306?s=20
- Not Alone Coloring Book! https://syngap.fund/notalone
- Cannonball 11 DAYS . 3 dads driving across the US https://syngap.fund/cball #UFDcure
- Go to the GALA! 29 DAYS! https://syngap.fund/gala
- Easy to do https://syngap.fund/GNP
- Donate to our current effort for Clinical Trial Readiness https://Syngap.Fund/CTR
- Sign up for this #podcast #SYNGAP10 here https://syngap.fund/10
- What is #SYNGAP1? https://www.syngapresearchfund.org/home/what-is-syngap1
This was Episode 28 of #Syngap10 - September 24th, 2021
#F78A1 #ICD10 #Syngap #epilepsy #autism #intellectualdisability #id #raredisease #epilepsyawareness #autismawareness #rarediseaseresearch #SynGAPResearchFund #CareAboutRare #PatientAdvocacy #GCchat #Neurology #Genetics #Pediatrics
Released:
Sep 24, 2021
Format:
Podcast episode
Titles in the series (100)
BREAKING NEWS ?re ICD-10 & other goodness around #SSB30 & #sprint4syngap - Episode 8 of #Syngap10 - April 30th, 2021: SYNGAP10 - Episode 8 - BREAKING NEWSThis episode is an absolute must. Don't miss it. - Reminder that #SSB30 is happening now, the first pharma sponsored study on #ciitizen. If you are enrolled in Ciitizen, start doing your seizure tracker today:? ... by SynGAP10 weekly 10 minute updates on SYNGAP1