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Katrien Deckers reflects on European ?? Epilepsy Conference - #S10e115 (Volume up)

Katrien Deckers reflects on European ?? Epilepsy Conference - #S10e115 (Volume up)

FromSynGAP10 weekly 10 minute updates on SYNGAP1


Katrien Deckers reflects on European ?? Epilepsy Conference - #S10e115 (Volume up)

FromSynGAP10 weekly 10 minute updates on SYNGAP1

ratings:
Length:
13 minutes
Released:
Sep 17, 2023
Format:
Podcast episode

Description

Katrien Deckers reflects on European ?? Epilepsy Conference - #S10e115 (Volume up)
 
Katrien: https://www.syngapresearchfund.org/team/katrien-deckers-chairperson 
 
Dr. Eschermann's Slides  https://www.patre.info/2023/09/04/presentation-at-iec-2023/
EURAS Project Press Release https://euras-project.eu/
 
Register for the SRF Conference, it’s going to be fabulous.
- Registration link: https://Syngap.Fund/Orlando  
 - Hotels ASAP: https://Syngap.Fund/2023hotel  
 - Merch https://www.bonfire.com/srf-syngap1-conference-2023/ 

Volunteer with SRF!
 - https://www.syngapresearchfund.org/volunteer-with-syngap-research-fund


This is a podcast: subscribe to and rate this 10 minute #podcast #SYNGAP10
- https://www.syngapresearchfund.org/syngap10-podcast

Apple podcasts: 
- https://podcasts.apple.com/us/podcast/syngap10-weekly-10-minute-updates-on-syngap1-video/id1560389818
Episode 115 of #Syngap10 - September 17, 2023
#epilepsy #autism #intellectualdisability #id #anxiety #raredisease #epilepsyawareness #autismawareness #rarediseaseresearch #SynGAPResearchFund #CareAboutRare #PatientAdvocacy #GCchat #Neurology #GeneChat


 
Released:
Sep 17, 2023
Format:
Podcast episode

Titles in the series (100)

Over 900 families are caring for a loved one with the rare disease ”SynGAP” resulting from a variant of the SYNGAP1 gene. This 10 minute weekly podcast is for them. A quick summary of the latest news in the space. The host is Mike Graglia, co-founder & managing director of the SynGAP Research Fund. SRF is a parent-led, all volunteer public charity in the US that strives to accelerate research into treatments for SYNGAP1 so that we can help our loved ones in a timeframe that matters. Learn more at https://www.syngapresearchfund.org/