10 min listen
Grateful for the incredible SRF team/family...
Grateful for the incredible SRF team/family...
ratings:
Length:
10 minutes
Released:
Nov 19, 2021
Format:
Podcast episode
Description
Top 5:
10 to go! https://syngap.fund/NHS or https://www.ciitizen.com/syngap1/
https://syngap.fund/gt21
https://syngap.fund/rt3
Studies:
ORCA - Full
FRAZIER - email Corey@syngapresearchfund.org
SIGN UP ALL ONLINE https://syngap.fund/adults and email Lauren@syngapresearchfund.org
Old Guard:
Aaron, Olga, Rebecca,
Virginie, Hans https://www.syngapresearchfund.org/post/meet-the-globalvillage-of-syngapleaders by Jo!
Marta, Vicky, Peter, Kali, Summer
Pavel, Nancy, Sydney
Tavillas
Lauren Perry
New wave of leaders:
Alexis https://syngap.fund/naya
Corey Baysden
Jen & Dan Robert
Suzanne Jones
Caitlin Kasper
Ashley Frye
GET YOUR CARDS! Minted.com FUNDRAISESYNGAP
Episode 36 - November 19th, 2021
https://www.syngapresearchfund.org/syngap10-podcast
#grateful #studies #ciitizen #givingtuesday #SynapseRT #adultswithdisabilities #leadership #careaboutrare #GlobalGenes #minted #Syngap #epilepsy #autism #intellectualdisability #id #raredisease #epilepsyawareness #autismawareness #rarediseaseresearch #SynGAPResearchFund #CareAboutRare #PatientAdvocacy #GCchat #Neurology #Genetics
10 to go! https://syngap.fund/NHS or https://www.ciitizen.com/syngap1/
https://syngap.fund/gt21
https://syngap.fund/rt3
Studies:
ORCA - Full
FRAZIER - email Corey@syngapresearchfund.org
SIGN UP ALL ONLINE https://syngap.fund/adults and email Lauren@syngapresearchfund.org
Old Guard:
Aaron, Olga, Rebecca,
Virginie, Hans https://www.syngapresearchfund.org/post/meet-the-globalvillage-of-syngapleaders by Jo!
Marta, Vicky, Peter, Kali, Summer
Pavel, Nancy, Sydney
Tavillas
Lauren Perry
New wave of leaders:
Alexis https://syngap.fund/naya
Corey Baysden
Jen & Dan Robert
Suzanne Jones
Caitlin Kasper
Ashley Frye
GET YOUR CARDS! Minted.com FUNDRAISESYNGAP
Episode 36 - November 19th, 2021
https://www.syngapresearchfund.org/syngap10-podcast
#grateful #studies #ciitizen #givingtuesday #SynapseRT #adultswithdisabilities #leadership #careaboutrare #GlobalGenes #minted #Syngap #epilepsy #autism #intellectualdisability #id #raredisease #epilepsyawareness #autismawareness #rarediseaseresearch #SynGAPResearchFund #CareAboutRare #PatientAdvocacy #GCchat #Neurology #Genetics
Released:
Nov 19, 2021
Format:
Podcast episode
Titles in the series (100)
Adults, New parents, ABA, Misense and Money - Episode 9 of #Syngap10 - May 7th, 2021: In this episode, Mike reflected on a conversations with and questions from SYNGAP parents who have responded to previous episodes of SYNGAP10. As usual, it was packed. Thanks to DISORDER for listing SYNGAP10 as one of the best Rare Disease podcasts.... by SynGAP10 weekly 10 minute updates on SYNGAP1