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The future is coming, let’s build it!

The future is coming, let’s build it!

FromSynGAP10 weekly 10 minute updates on SYNGAP1


The future is coming, let’s build it!

FromSynGAP10 weekly 10 minute updates on SYNGAP1

ratings:
Length:
10 minutes
Released:
Sep 10, 2021
Format:
Podcast episode

Description

#SYNGAP10 - Episode 26 - September 10th, 2021 - The future is coming, let’s build it!
A wonderful letter from a parent “on an island” that reminded us of the  https://Syngap.fund/lens with http://joashline.com/ made my week.
Digital Lighthouse concept in the 12 Commandments Interview with Effie: https://effieparks.com/podcast/episode-094-mike-and-nasha 
First principles, we are here to change the future and help each other.
The future is coming: Invitae & Ciitizen
Read this FAQ https://www.ciitizen.com/announcement/ 
Sign up for Ciitizen https://ciitizen.com/syngap1 

We make the future by raising funds and building community, that is happening twice over with #UFDcure Cannonball & Care Leib Gala.
https://syngap.fund/cball -> https://www.syngapresearchfund.org/cannonball 25 Days, 
https://syngap.fund/gala -> https://www.syngapresearchfund.org/gala 43 days (19 for tix)

Two big announcements next week!
Donate to our current effort for Clinical Trial Readiness https://Syngap.Fund/CTR 
Sign up for this #podcast #SYNGAP10 here https://syngap.fund/10
This was episode 26 of #Syngap10
What is SYNGAP1?  https://www.syngapresearchfund.org/home/what-is-syngap1 
#F78A1 #ICD10 #Syngap #SYNGAP1 #epilepsy #autism #intellectualdisability #id #raredisease #epilepsyawareness #autismawareness #rarediseaseresearch #SynGAPResearchFund #CareAboutRare #PatientAdvocacy #GCchat #Neurology #Genetics #Pediatrics
 
Released:
Sep 10, 2021
Format:
Podcast episode

Titles in the series (100)

Over 900 families are caring for a loved one with the rare disease ”SynGAP” resulting from a variant of the SYNGAP1 gene. This 10 minute weekly podcast is for them. A quick summary of the latest news in the space. The host is Mike Graglia, co-founder & managing director of the SynGAP Research Fund. SRF is a parent-led, all volunteer public charity in the US that strives to accelerate research into treatments for SYNGAP1 so that we can help our loved ones in a timeframe that matters. Learn more at https://www.syngapresearchfund.org/