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Ep 038: Unifying the Chromosome 8p Community While Accelerating Treatments for Tomorrow

Ep 038: Unifying the Chromosome 8p Community While Accelerating Treatments for Tomorrow

FromThe Truman Charities Podcast: A Philanthropists Guide To Charitable Organizations


Ep 038: Unifying the Chromosome 8p Community While Accelerating Treatments for Tomorrow

FromThe Truman Charities Podcast: A Philanthropists Guide To Charitable Organizations

ratings:
Length:
22 minutes
Released:
Dec 29, 2021
Format:
Podcast episode

Description

Bina Shah

– The Truman Charities Podcast: A Community of Caring with Jamie Truman Episode 38 Bina Shah.
In 2018, Bina founded Project 8p Foundation to accelerate research with the goal of treatment for chromosome 8p heroes like her daughter Karina. Since then, she has fully committed herself to the advancement of clinical and research understanding of rare disorders, in particular neurodevelopmental chromosomal disorders such as the 8p rearrangements. Shifting perspectives from disease specific efforts to innovative approaches that are gene-agnostic and cross disorder is a long term scalable vision of hers. As a result, she is the founding partner of the Commission on Novel Technologies for Neurodevelopmental Copy Number Variants (CNVs).

Her family resides in New York City where Bina earned her B.S. in Finance & Marketing from NYU Stern Business School as well as her M.B.A. from Columbia University. She has over 15 years of experience in finance in the areas of mergers and acquisitions, private and public equity investing, real estate development, and property management. Bina leverages her business and entrepreneurial background and network to build bridges to improve efficiencies in a Collaborative Impact model for Team Science.

Listen to this uplifting Truman Charities episode with Bina Shah about her business and entrepreneurial background and network to build bridges to improve efficiencies in a Collaborative Impact model for Team Science.

Here is what to expect on this week’s show:
- Bina's personal journey and why there is such a need for education on this rare disease.
- Project 8P events where families from all over the world can come together and finally not feel alone
- Where Bina sees Project 8p in ten years and how we can help these children

Connect with Bina:
Website- https://project8p.org
Learn more about your ad choices. Visit megaphone.fm/adchoices
Released:
Dec 29, 2021
Format:
Podcast episode

Titles in the series (59)

The Truman Charities Podcast: A Community of Caring with Jamie Truman is for philanthropists that are actively looking to expand their donor portfolio. Jamie will be having in depth conversations with founders of charitable organizations. At the conclusion of each episode you will be able to make an educated decision on if their organization resonates with you.  Jamie Truman is the Co-Founder of Truman Charities. Truman Charities has raised close to 1.5 million for several charities over the past twelve years.  Tune in every other week and listen to founders of different organizations share why their organization is meaningful to themselves and the community.  As a thank you to our guests the Truman family donates $250 to each organization that Jamie interviews.