Losing a Hero to Alzheimer's: The Story of Pearl
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About this ebook
This is a compelling story about the life of a caring woman, Pearl, who was the rock of her family and afflicted with Alzheimers. She was in a bad marriage for over thirty years and had a strong relationship with God. Pearl was the biological mother of four children but a mother to many others. Jesse, Pearls husband, was unfaithful and verbally and physical abusive throughout their entire marriage. Pearl also struggled with depression. Her husband conveniently remained in denial about her illness. That way he wouldnt have to address his wife losing her independence. As Pearl progressed through the grueling stages of Alzheimers, she became more and more forgetful. She was forced to retire from her job and started to lose her social life. With the stress from her marriage that she masked for so many years and an unsafe living environment, Pearls condition took a turn for the worse. As the illness progressed, her body functions started to shut down. Patricia was forced to take action as other family members stood still, watching from the sidelines. When Patricia and Blake accepted Pearl into their home, it was the beginning of a divided family and an estranged relationship with her father, who was bitter and felt betrayed. Trish held on to God as she dealt with the stress from her family and her mothers debilitating disease.
Patricia M. McClure
Losing a Hero to Alzheimer’s: The Story of Pearl is a story about Patricia’s mother going through the grueling stages of Alzheimer’s. It is Patricia’s hope that anyone who reads this book will be able to identify the stages of Alzheimer’s and develop a new perspective on how to respond to a loved one suffering from this illness. She is so grateful for the opportunity to be able to encourage someone who is on a journey of taking care of a loved one with Alzheimer’s.
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Losing a Hero to Alzheimer's - Patricia M. McClure
Copyright © 2015 Patricia M. McClure.
All rights reserved. No part of this book may be used or reproduced by any means, graphic, electronic, or mechanical, including photocopying, recording, taping or by any information storage retrieval system without the written permission of the author except in the case of brief quotations embodied in critical articles and reviews.
Scripture taken from the King James Version of the Bible.
This book is a work of non-fiction. Unless otherwise noted, the author and the publisher make no explicit guarantees as to the accuracy of the information contained in this book and in some cases, names of people and places have been altered to protect their privacy.
WestBow Press
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Because of the dynamic nature of the Internet, any web addresses or links contained in this book may have changed since publication and may no longer be valid. The views expressed in this work are solely those of the author and do not necessarily reflect the views of the publisher, and the publisher hereby disclaims any responsibility for them.
Any people depicted in stock imagery provided by Thinkstock are models, and such images are being used for illustrative purposes only.
Certain stock imagery © Thinkstock.
ISBN: 978-1-5127-0721-2 (sc)
ISBN: 978-1-5127-0723-6 (hc)
ISBN: 978-1-5127-0722-9 (e)
Library of Congress Control Number: 2015912798
WestBow Press rev. date: 08/31/2015
CONTENTS
Preface
Acknowledgments
Introduction
Chapter 1 Mom’s Early Days
Chapter 2 When Pearl Meets Jesse
Chapter 3 Two Different Worlds
Chapter 4 World’s Greatest Mom
Chapter 5 Fighting with the Enemy
Chapter 6 The Prelude to the Unwanted Guest!
Chapter 7 The Unwanted Guest Arrives!
Chapter 8 Naughty by Nature
Chapter 9 Lifestyle Shift
Chapter 10 It Is What It Is!
Chapter 11 A Dirty Player
Chapter 12 The Dark Days
Chapter 13 A Dark Christmas Season
Bibliography
About the Author
I dedicate this book to my mother, the late Ann Shirley McClure (aka Pearl). You were truly a saint sent from the Lord. You helped shape me into the woman I am today. You were an awesome mother, friend, and confidant. You helped to change the world through your smile, your service, and the life that you lived. God allowed you to be my mother. I am forever grateful for every sacrifice you made for our family and me. Your living was not in vain, and your legacy will live on forever.
I can’t put a number to the years that I need you here on earth so I carry you with me daily in my heart.
—Patricia M. McClure
PREFACE
L osing a Hero to Alzheimer’s: The Story of Pearl has been in the making for the past ten years. I was waiting for the moment I was strong enough, emotionally and spiritually, to share my journey in caring for my mother with Alzheimer’s. Losing a Hero to Alzheimer’s: The Story of Pearl will show the epitome of a strong, spiritual woman who endured so much in her lifetime and positively impacted people’s lives. Pearl was afflicted with the ugly disease of Alzheimer’s, and her mental condition spiraled downward. As my mother’s caregiver, I experienced a high level of stress and encountered many challenges. I will share some of Pearl’s behavior and how they align with the cognitive declination stages according to the Alzheimer’s Association.
I strongly acknowledge that it was only by the strength of God that I was able to endure this life-changing experience with a very limited support system. So many families are stricken by this disease on some level. I hope my story will give caregivers practical guidance who encounter this dreadful disease.
ACKNOWLEDGMENTS
I am so appreciative of my family and friends for believing in me. Thank you to my judicious editor, Chiquita R. Griffin. I want to thank my God-brother, Byron Barnes, for believing in me and listening to me whenever I wanted to talk about this book. I am grateful for my children who encouraged me while I wrote this book. Your continued interest and excitement is what kept me motivated. I want to give a special thanks to my husband (Pastor Eric H. Chessier) for standing by my side through thick and through thin. You treated my mother with love and patience, and for that I truly thank you.
INTRODUCTION
A nn Shirley Strayhon (aka Pearl) was born on December 26, 1934, in Chicago, Illinois. Raised in Hyde Park, she was the only girl of four children. Pearl met Jesse McClure while singing in the choir at a Baptist church on the South Side of Chicago. Jesse was from Little Rock, Arkansas. They later married, and to this union four children were born—three girls and one boy. I, Patricia Madina McClure, was the youngest daughter in the family.
Our family lived on the South Side of Chicago, and Pearl was our rock. She was a very spiritual woman and walked closely with God. By all accounts, Pearl was known for the love and kindness she showed her family, friends, and the community. She was a hands-on parent and active in her neighborhood.
After I, her youngest child, started school, Pearl began her career working at one of the largest skyscrapers in downtown Chicago. She was in a difficult marriage but found happiness in other outlets. She was also the full-time caregiver of one of her oldest brothers, who was handicapped.
Pearl did whatever she could to give her children various opportunities and experiences, which my father, Jesse, resented. He was bitter and selfish because he grew up with limited resources. Pearl’s marital problems really started to take a toll on her, and she began showing signs of depression. In later years, she started to show early signs of Alzheimer’s. Eventually, her coworkers started to see changes in her job performance. To avoid taking responsibility, some family members remained in denial that she had Alzheimer’s. Pearl started to exhibit behaviors that jeopardized her safety and welfare which caused great concerns for me. It was also hard to accept that Pearl had a problem because she had always been so strong and independent.
Through this book I will do my best to illustrate the characters
in my family and bring their personalities to life. This story is vey visual, dramatic, and emotionally driven, and you, the reader, will hopefully remain engaged from start to finish. My desire is that the reader will walk away with a practical understanding of the stages of Alzheimer’s, and how this debilitating illness affects the family system.
CHAPTER 1
Mom’s Early Days
M y mother grew up on the South Side of Chicago, in Hyde Park, in the 1930s and 1940s. She was the youngest and the only girl of four children. Pearl was spoiled by her father, who