When Lightning Strikes Twice
By Gina Rubin
()
About this ebook
WHEN LIGHTNING STRIKES TWICE is an inspirational story about a mother and daughter diagnosed with cancer six weeks apart. The book journals the family's long journey to recovery, and how they were able to come out on top with the support of family and friends.
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Book preview
When Lightning Strikes Twice - Gina Rubin
Contents
Testimonials
Preface
Iliana’s Igloo
Vacation
What’s Wrong with Iliana?
Leukemia
Reactions
First Days in the Hospital
Accessing the Port — Sara Willis
Two Kids —Their Desire to Help
Pancreatitis
School Starts — Not for Everyone
My Daughter Saved My Life
When Lightning Strikes Twice
Confirmation
Our Mayberry
Don’t Fear Striking Out — Play the Game
My Nephew’s Moment to Shine
Benefit at Coach’s Corner
Chemotoxicity
Iliana is Back at School
Girls Can Fight
We are Done!
Thunder Keeps Rolling:
Life After Cancer
Cancer Keeps on Giving
Team LoCo on Cancer
No Confidence
Testimony
About the Author
WHEN LIGHTNING
STRIKES TWICE
Gina Elkon Rubin
When Lightning Strikes Twice
Smashwords Version
Copyright © 2021 Gina Elkon Rubin
All Rights Reserved. No part of this book may be reproduced in any form or by any electronic or mechanical means including information storage and retrieval systems without permission in writing from the publisher, except by a reviewer, who may quote a brief passage in a review.
Freeze Time Media
Cover designer: Judy A. Tashji
To My Family and Best Friend
Testimonials
A truly inspiring, terrifying, heartbreaking, and heroic story of a family pushed to the extreme. It is a story of support and kindness that needs to be shared. Rubin’s raw account of her daughter’s battle, followed so quickly and parallel to her own, demonstrates how the love of family and friends can push through the darkest hours. It empowers the reader to do better, be better, and fight with everything until there is a cure for cancer.
—Ria Freydberg, Executive Director, Mid-Atlantic Region of LLS
This is a heart-wrenching, can-do-anything story of what no family should go through once, never mind twice. It’s a story of resilience, as well as one of hope and faith in the human experience. The Rubin family story makes the reader want to do a better job of realizing how lucky they are, in an age where too many are focused on
me and what’s better for only them. With faith, family, perseverance, and most importantly love from friends and family, one realizes how important it is to look out for one another. When you’re done, you will just want to hug your kids, your spouse, your parents, and give thanks for all the non-material things in one’s life.
—Alex Spira, MD, PhD, FACP, Medical Oncologist, Virginia Cancer Specialists
Acknowledgment
Thanks to all the individuals who helped Iliana and me through our peril. There are so many it is impossible to name them all. However, I have acknowledged some who went above and beyond on my website — www.wix.com/LightningStrikes2xs.
Even though I am lucky enough to have so many wonderful people in my life, there are a few who I will mention here. First off, my best friend and her husband, Mechal Weiss Haas and Chaim Haas. Besides being my marketing
department for this book, Mechal and Chaim lifted mountains just to be by our side and help us in any way they could. They sent Iliana and me tons of presents (fun and emotional), called many times a day to lift our spirits, traveled many miles to see us, and did whatever was necessary to make sure we were okay. It was comforting to have them fight beside us.
My family! There are lots of them, so be patient. First my brother and his family, Ezra, Marla, Ross, and Sydnee Elkon — the saying goes, I smile because you’re my brother. I laugh because there’s nothing you can do about it!
So true, but the second I need him, he is there. When he found out about Iliana, he left work and came to the hospital. Even though I inherited my sister-in-law through marriage, she acts as though we have been sisters my whole life. She, too, left work and came to the hospital as soon as she heard about Iliana. It melts my heart to know I will always have devotion by my side with them.
My nephew, Ross Elkon, spent countless hours editing this book. Prior to that when he was at the young age of 13, he wanted to shave his head, paint his nails orange, and instead of party favors for his Bar Mitzvah party, he wanted to donate the money to a cancer organization, all in honor of his little cousin. And not to be forgotten, my niece. When she heard about editing the book, she wanted in on the action.
My in-laws, Ron and Mindy Rubin, have always made themselves available to us, definitely products of their terrific upbringing. I think that because when their families heard about Iliana and me, they also did whatever they could (and still do) to help us.
With a tremendous amount of luck and thanks to God, I was born to Michael and Joan Elkon. I remember during my childhood there were times I would wish they were cooler or like someone else’s parents; however, I know now how lucky I was and am. Even if we disagree, my parents have always supported me in my endeavors and were always around when I needed someone to turn to. I take their love for granted because I am fortunate it will always cloak me.
And last but certainly not least, my husband and kids. My husband, Josh, had a tremendous amount to endure. Besides having to be the breadwinner, he cured Sarah and Ithan’s boo-boos, chauffeured all of us around, cuddled Iliana when she was scared or needed love, and still found time to nurse me back to health, physically and emotionally. Somehow through all that, he still made us laugh.
Sarah, my oldest, tried not to cause Josh or me any grief as she knew we had so much to handle already. As soon as she heard about Iliana she jumped into action, fundraising in different ways. In fact, due to her efforts with the Leukemia & Lymphoma Society, she has raised over $70,000 for them.
Ithan, my middle child and only son, inherited Josh’s humor and my big smile. In fact, he caused Iliana and me to laugh through our whole awful journey with cancer.
My youngest, my MVP, Iliana. Even though she is still a child, she has had to endure more than most people do in a lifetime. Her love of life and persistence to always survive is a lesson to us all. Without her constant smile and humor, I am not sure how I would have endured my diagnosis.
Preface
I can still remember every second, every moment, of that fateful day. I can still remember every sight, every detail, of Fairfax Hospital. I can still remember every thought, every emotion in that small piece of time. The fear when the doctor sat my husband and me down, took a deep breath, and with sorrow in his eyes, said those four words, those six life-changing, earth-shattering syllables: Your daughter has cancer.
My name is Gina Rubin. My husband’s name is Josh, and we have three children: Sarah, Ithan and Iliana. On July 22, 2015, we were told that Iliana, my youngest daughter, age six, had acute lymphoblastic leukemia. The news shocked our family, our friends, and our community; it was a true lightning strike to our hearts. The storm that arose encapsulated us all, but this was a thunderstorm, and then lightning struck twice.
About six weeks after Iliana’s initial diagnosis, I was diagnosed with Burkitt lymphoma, another form of blood cancer. I was shocked that two out of five members of my generally healthy family had been diagnosed with cancer. A mother and daughter diagnosed with blood cancer at the same time is almost unheard of. This is a story that needs to be heard, so here is our story.
Part One
Iliana’s Igloo
1
Vacation
My name is Gina Rubin. I am happily married to my husband, Josh, and we have three wonderful children: Sarah, Ithan, and Iliana. We live in a beautiful community filled with extraordinary people in Purcellville, Virginia, only twenty minutes from both my parents and my in-laws. My brother, Ezra, and his wife, Marla, don’t live much further away, with my nephew and niece, Ross and Sydnee. I am lucky to have many close friends that live both near and far. Without the support of all of these people, I wouldn’t have been able to weather the storm of the next few years.
Our ordeal began in the summer of 2015. The kids were excited to get out of school and I was excited to spend some quality time with the family. Our summer was filled to the brim with plans: camps, relaxation, and to top it all off, one big vacation for all of us. We were going to California for the wedding of a family friend, and while we were there, planned to take the kids to nearby Disneyland. We were going on the trip with my in-laws, Ron and Mindy Rubin, known by my kids as Zeidie and Bubbie, and whom I adore. On July 9, 2015, we set off on our vacation. The plane ride to San Francisco was Iliana’s first flight, and afterward, we drove to Anaheim. We arrived a few days prior to the wedding to allow for us to enjoy ourselves. While in San Jose, we visited nearby San Francisco and did the typical tourist things, including going to Ghirardelli Square. In order to get to Ghirardelli Square, we had to walk up a steep hill. Iliana complained her legs hurt, so much so that she refused to walk up to the Ghirardelli store. In hindsight, I should have noticed something off with my typically sweets-loving daughter, but at the time, I thought she was just being a diva. I sat with her while everyone else got ice cream and, though I now regret it, chastised her for refusing to walk.
After exploring San Francisco for a while, we went to the wedding, which