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Bone and Joint Health: Monitoring and Detection Strategies
Bone and Joint Health: Monitoring and Detection Strategies
ratings:
Length:
55 minutes
Released:
May 26, 2022
Format:
Podcast episode
Description
Even with the introduction of prophylaxis, the goal of achieving perfect bone and joint health for patients with hemophilia through normalizing homeostasis remains elusive. In this episode, we cover the current monitoring and detection strategies and explore the investigational work that’s aimed at enhancing existing tools, validating suspected tools, and discovering entirely new ones. Episode Advisors: Dr. Marilyn Manco-Johnson Dr. Kathelijn Fischer Contributors: Dr. Annette Von Drygalski Dr. Tyler W. Buckner Dr. Amy Dunn Dr. Suchitra S Acharya Dr. Andrea Doria Dr. Beth Warren Tom Russomano Senior Advisor: Dr. Donna DiMichele Links to learn more: Young adult outcomes of childhood prophylaxis for severe hemophilia A: results of the Joint Outcome Continuation Study Measurement of joint health in persons with haemophilia: A systematic review of the measurement properties of haemophilia-specific instruments Vascular remodeling underlies rebleeding in hemophilic arthropathy Quantitative measurements of haemophilic joint tissues by point‐of‐care musculoskeletal ultrasound: Associations with clinical and functional joint outcome parameters How Do PROMIS Scores Correspond to Common Physical Abilities? Evaluating international Haemophilia Joint Health Score (HJHS) results combined with expert opinion: Options for a shorter HJHS Show Notes: Presenting Sponsor: Sanofi Subscribe to the Global Hemophilia Report Connect with the Global Hemophilia Report Global Hemophilia Report on LinkedIn Global Hemophilia Report on Twitter Global Hemophilia Report on Facebook Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter
Released:
May 26, 2022
Format:
Podcast episode
Titles in the series (29)
Mental Health and Hemophilia in Adolescence and Young Adulthood: In March 2022, a Washington Post article highlighted children and adolescents in the US experiencing a mental health crisis, but how does a hemophilia diagnosis further complicate a young person’s mental wellbeing? What data exists to support... by Global Hemophilia Report