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    Global Hemophilia Report

    Global Hemophilia Report

    Global Hemophilia Report

    ratings:
    Length:
    29 episodes
    Language:
    English
    Format:
    Podcast

    Description

    Led by science, curiosity, and storytelling, the Global Hemophilia Report from BloodStream Media is an entertaining monthly journey through the investigations and science driving hemophilia research around the world.

    Produced by: Believe Limited & BloodStream Media
    Hosted by: Patrick James Lynch
    Senior Advisor: Dr. Donna DiMichele
    Featured Advertiser: Sanofi Genzyme

    #GHRpod #hemophilia #clinicalresearch #bloodstreammedia
    Language:
    English
    Format:
    Podcast

    Episodes1 - 10 of 29 episodes

    Title

    World Hemophilia Day

    On this episode of the Global Hemophilia Report, host Patrick James Lynch is on locatio...

    25 minutes
    		Apr 26, 2024

    Translating Patient-Reported Clinical Outcomes into Patient-Informed Clinical Research Outcomes

    In this episode, delve into the transformative journey of patient-reported outcomes mea...

    50 minutes
    		Mar 28, 2024

    Understanding Factor VIII & IX - In Coagulation and Beyond - How Much Are We Still Missing?

    The topic of discussion for this episode leans more toward the scientific side but has ...

    48 minutes
    		Mar 15, 2024

    Hemophilia Gene Therapy Redux – The End of the Beginning?

    Gene therapy for hemophilia A and B now exists as a licensed, prescribable treatment op...

    60 minutes
    		Jan 25, 2024

    PTSD & Hemophilia

    Join us as we shed light on the often-overlooked intersection of Post Traumatic Stress ...

    54 minutes
    		Dec 28, 2023

    The US National Research Blueprint (NRB)

    The US National Research Blueprint (NRB). Thriving in the Face of an Inheritable Bleedi...

    59 minutes
    		Nov 30, 2023

    LGBTQ+ Health- Addressing Specific Needs in Comprehensive Hemophilia Care

    In this episode, we address the critical intersections of LGBTQ+ health and hemophilia ...

    57 minutes
    		Oct 26, 2023

    Sexual Health- An Unaddressed Need in Comprehensive Hemophilia Care

    On this episode, we will address defining sexual health and its importance to hemophili...

    51 minutes
    		Sep 28, 2023

    Mild Hemophilia A: A Misnomer?

    Persons with mild hemophilia have been shown to experience more bleeding - related morb...

    52 minutes
    		Aug 31, 2023

    Telemedicine for the Care of Hemophilia: What Do We Gain And What Do We Lose?

    Telehealth options are assumed to provide added benefit to providers and patients alike...

    48 minutes
    		Jul 27, 2023