15 min listen
An Inside Look at Angelman Syndrome Rare Disease: An Interview with Amanda Moore
FromWCG Talks Trials
An Inside Look at Angelman Syndrome Rare Disease: An Interview with Amanda Moore
FromWCG Talks Trials
ratings:
Length:
19 minutes
Released:
Jan 13, 2020
Format:
Podcast episode
Description
In this episode, Amanda Moore, CEO of Angelman Syndrome Foundation speaks with Steve Smith, WCG’s President of Patient Advocacy. As a mom whose son has been diagnosed with Angelman Syndrome - a rare neuro-genetic disorder that affects 1 in 15,000 children - Amanda walks through the time from receiving initial diagnosis to the odyssey of her son’s patient journey in therapy and clinical trials.
Released:
Jan 13, 2020
Format:
Podcast episode
Titles in the series (67)
The Most Pressing Challenges in Psychiatry Clinical Trials with Leslie Citrome, MD, MPH by WCG Talks Trials