Battle Scars: Glimpses of a Warrior
By Kristi G.
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Battle Scars - Kristi G.
Warrior Life
Lifestyle
Sickle cell sickles my cells and complicates my life
More often than not filling it with pain and strife
Making simple tasks seem larger than life
Larger than me and makes it much harder to see
The sun through the clouds
The fun through the shroud
Of pain
Dulling the natural beauty of rain
Because I know what it brings
And goals become much harder than they seem
It often convinces me that I will never attain my dreams
And make them my reality
Because the thing is, that to society
It seems as though I’m lazy, unmotivated, a liar and drug addicted
When really all I seek is relief
And all I want is the chance to be what I was born to be
And to have the world see all of the good in me
The beauty within how we handle our struggle
The way we shine in spite of how we suffer
We deserve for people to believe
That our fight is real, not just some drama we conceived
Or an imaginary enemy that we perceive
Sickle cell warrior is not merely a catchy phrase or a meaningless title
We are warriors in the fight for our lives
It means enduring and overcoming, making sure our spirits survive
It’s advocating and praying, and not letting our worth be denied
Sickle cell warrior isn’t just a name meaning sick child
Being a sickle cell warrior is so much more, it’s a lifestyle
Plight of a Cell
Swimming, racing, rushing
Got to get the oxygen there
Swerving, skidding, sickling more by the second
No clotting, avoid the clumps
Can’t crash, can’t hit the walls
Can’t break, can’t stall
No bumper zone here
Everything sticks, everything clogs
The cells work so hard to keep me alive,
To keep me in existence
And still, it can all diminish;
Evaporate into nothingness
And it can all end… at anytime
Now, tomorrow, next week, next year
Sometimes it ends in a flash
Other times it can take nearly a lifetime
The uncertainty is torture
But the helplessness is what’s truly painful
Crisis
Pain, agony, suffering
Die wicked deviance
Evil deformity, sickening mutation
Feel, hurt, cry, misery
Cursed cells with the jagged edge
Piercing pain, bruised vein
Sharp needle, white lights
Warm liquid, burning vein
Numbing, erasing wicked pain
Round cells carry oxygen
Twisted cells carry suffering
Hurry liquid, hurry up, run
Bring me ease and sleep to come
Escape, sweet escape I pray
Pain, I beg you, please stay away
The Beast Within
My body is on fire,
but only from within
No one can see with certainty
The burning going on inside of me
This searing pain is a living, breathing thing
An out of control monster,
created from my own mutated blood cells
This angry, spike covered demon runs amuck inside of me,
leaving pain in its wake
And his triumph is in my every ache
From my neck to my hips, my shoulders, even the bottoms of my
feet
I live on the brink of constant agony
But I will not let this demon have me
Only God rules this woman here
But still, it remains to torture me,
although I follow only Him
God gives me the strength to fight it every day
And when its just too much to bear,
I put my faith in fervent prayer
A demon lives inside of me,
but it will not win
Only God has the power to silence the beast within
Struggle of a Sickled Cell
You LOATHE me, you HATE me
This I know
And I do not blame you…
I cause you pain, I cause you misery, and make you cry
My kind has manifested, spread, and dwelled
Within you since birth
You’ve learned to live with me yet you refuse to respect me
And I know why
I HINDER you, I RESTRICT you
And you are reminded that
IN ALL THAT YOU DO I FAIL YOU
Yet I try, I struggle, I work so hard
My struggle exists
In avoiding the walls as I swim
My struggle you do not understand
BUT MY PAIN YOU SUFFER
You recognize and acknowledge
My flaws you curse
You think of me and my kind as a poison
But we do our best… TO KEEP YOU ALIVE
My life I’ve struggled to be
strong, circular, to flow with ease
My life I’ve remained sickled and clotted
Jagged and weak
MY LIFE IS MY STRUGGLE TO SERVE YOU
and still without fail you curse me endlessly
This I know
The Feeling
I can feel it slipping away
More rapidly than before
Each disfigured cell that dies
Snatches another moment of my life
And I can feel it
…my life slipping away
I was never scared of it when I was