The Journey of Two Souls
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About this ebook
This book is about my mother and our journey, with her becoming the person cared for and I the caregiver. It is honoring mother and her struggle. It is a book of care, love, support, and hope.
Linda Darlene Marie Sharpe
I am a first-time author of a book. I have written articles in journals and newsletters. I have given countless lectures and have done a lot of program development. I have multiple interests, such as gardening, reading, traveling, and having small dinner parties. I am a singer/cantor (We Are Called) and a tour guide for my sassy seniors group. I worked for thirty-six years in the medical field as a metabolic support dietitian. Six years ago, I retired and became my mother’s caregiver. After she passed away at the age of one hundred, I felt compelled to share our story about our change in relationship from mother-daughter to patient-caregiver.
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The Journey of Two Souls - Linda Darlene Marie Sharpe
Copyright © 2017 by Linda Darlene Marie Sharpe.
All rights reserved. No part of this book may be reproduced or transmitted in any form or by any means, electronic or mechanical, including photocopying, recording, or by any information storage and retrieval system, without permission in writing from the copyright owner.
Any people depicted in stock imagery provided by Thinkstock are models, and such images are being used for illustrative purposes only.
Certain stock imagery © Thinkstock.
Rev. date: 12/16/2016
Xlibris
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CONTENTS
Foreword
Prologue
Acknowledgment
Introduction
Chapter 1: She Is My Mother
Chapter 2: I Am The Daughter
Chapter 3: The Change, the Cause
Chapter 4: Alzheimer’s Versus Dementia
Chapter 5: The Art of Caregiving
Chapter 6: Contending with Challenges
Chapter 7: The Role Of Faith and Spirituality
Chapter 8: Grieving
Chapter 9: Moving On
Bibliography
To all mothers and daughters who take on the journey of caregiving.
FOREWORD
It was a cold February morning. I was in a wheelchair as I had fractured my leg. The funeral, in many ways, was a blur. I was the cantor for the service, so I was escorted to the altar by my godson, whose funeral home handled the arrangement. People began to arrive. My sister was surprised at how many had come to celebrate Mother’s life. Father Tim was concelebrant with Father Patrick. Music was part of Mom’s life. She was a welcoming person, so we began with Gather Your People, O Lord.
Our psalm was the music version of Psalm 23 Shepherd Me, O God.
Our alleluia honored her heritage with Celtic Alleluia.
Mom supported our parish school’s STAR program, so we had school children do the general intercessions. Our communion hymn was Prayer of Saint Francis
as Saint Francis was her patron saint. Mother had a devotion to the Blessed Mother, so for our meditation, I chose On This Day, O Beautiful Mother.
Whenever we left from home, Mom would bless our travel and pray for a safe journey. So as we send Mother on her journey, we said the Traveler’s Prayer.
Because of the winter temperature, Mother’s committal took place at the parish. The hymn was The Song of Farewell
; Mother had a strong faith, so it was only fitting that the sending-off hymn was Lead Me, Lord.
We continued our celebration at the parish hall with a lovely luncheon provided by our Saint Gerard Guild which Mom was a member of.
This journey that Mother and I have taken is the object of this book.
*Music from Breaking Bread by Oregon Catholic Press, Portland, Oregon
Image%202.jpgPROLOGUE
As Mother’s family, we felt it appropriate that she tell her own story. She is at peace with her Father in heaven. She flies on eagle’s wings.
I was born in New London, Iowa, to Hiram and Gertrude Amelia Byers (both deceased). I was the fifth of seven siblings (all deceased); I came from a long family of teachers, ranchers, authors, and scientists. In my young years, I was a surgery nurse at Providence St. Vincent Medical Center. After having children, I became a homemaker.
I married Hugh and was blessed with three children. I married Lawrence (deceased), and we were blessed with a daughter. I have eight grandchildren, eight great-grandchildren, and seven great-great-grandchildren. I have a grand collection of Madonna’s as I drew my example from our Blessed Mother; I especially drew to Our Lady of the Seven Sorrows. She and I had similar passions.
I was very active in church in Oregon and California: prayer alert, the mothers’ club, PTA, and Stephens Ministry; in civic organizations: blood drive volunteer, room mother, master gardener, canvassed for cancer, heart association, home visitors, Rotary Ann, and Chamber of Commerce while we had our business.
My interests were gardening—thus my patron saint is Saint Francis, church, family, reading, walking, word games, music, and theater. I loved traveling and writing and receiving letters.
As I travel the highway over the rainbow, I pray that our good Lord keeps my family and friends in the palm of his hands.
ACKNOWLEDGMENT
To the Alzheimer’s Association with their countless resources that supported me through this journey,
To my faith family who keeps me hopeful and grounded,
To my family of friends and neighbors who helped with my mother’s care,
To my mother’s caregiver for sharing your gift and for maintaining her dignity,
To my family for their love and support for my mother and for their help with making some of the hard decisions we faced,
To my friends for supporting me during this time,
I am thankful to God for my faith and for giving me and my mother comfort throughout this journey.
INTRODUCTION
My mother went to God two years ago. She had lived in my home for twenty years. Mother had lived on her own for thirteen years after my father had passed. I was in the process of buying a home, and we decided to join together on this new adventure. Mother was independent, and at the time of the merger, she was managing an apartment complex. Our big concern was if she could make