Orthostatic Tremor: Am I the Only One?
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About this ebook
Do your legs tremble when you stand in place? Do you find yourself needing to sit down, so you wont fall? Then you have as many questions as I do. What is wrong with me? How do I cope with this? Is there medicine to help? What about physical therapy? What is this new brain surgery known as deep brain stimulation? Will it help me? Am I the only one to have this problem?
In my twenty-two-year trek with orthostatic tremor, I have found some of the answers. A rare neurological movement disorder, OT continues to baffle medical science. I am sharing my experiences in order to: 1) help identify orthostatic tremor symptoms , 2) explain the alternative of deep brain stimulation, 3) describe practical ways to manage the unique challenges of OT, 4) teach how to cope with an HMOs process of securing outside referral, and 5) offer hope for living with a disorder that currently has no cure.
Jane Baker Conner
Jane Baker Conner was reared in Decatur, Illinois. She graduated summa cum laude from Indiana University in 1960. Jane taught a variety of grades in elementary education for twelve years, then spent twenty-five years as a personal lines insurance agent. Mother of two, grandmother of five, Jane lives in Walnut Creek, California, with her four cats.
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Orthostatic Tremor - Jane Baker Conner
Copyright © 2013 Jane Baker Conner.
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ISBN: 978-1-4897-0044-5 (sc)
ISBN: 978-1-4897-0045-2 (e)
LifeRich Publishing rev. date: 11/03/2013
TABLE OF CONTENTS
Chapter One: What in the Sam Hill?
Chapter Two: Bingo!
Chapter Three: Coping
(or not?)
Chapter Four: A New Venture: Is DBS for You?
Chapter Five: Nine Months to Go Before New Birth
Chapter Six: Are We There Yet?
Chapter Seven: A Moment of
Truth"
Chapter Eight: It Takes a Village to the Rescue
Chapter Nine: Success Story Number Five
Chapter Ten: Jane Wraps It Up, Still Learning
Author’s Note:
Author’s Bio
Dedicated to: Doris of Modesto
,
my beacon of hope for the journey
Preface: Imagine having an ailment that no one can diagnose? Once named, it can’t be cured.
And yet, if only one reader finds help and hope from my story, I will be ecstatic.
CHAPTER ONE:
What in the Sam Hill?
I T STARTS IN MY EARLY FIFTIES. AN INSURANCE AGENT, I FIND MYSELF IN THE backyard of a favorite insured’s home in Sausalito. Armed with notebook and Polaroid camera, I’ve come to update the renewal data. Now it’s time to leave through the grassy steps, up the slope, through the gate. It was easy coming down, but suddenly my knees go weak and shaky, like they won’t support me. My client is still at work, so I’m on my own. In desperation, I get down on all fours and claw my way up. Once safely back in my car, I ask myself What just happened ?
and answer Jane, you really need to start Jazzercise or something to get your muscles stronger
.
Then begins a period of new awareness of occasions when my legs fail me. When standing