Commentary: How to talk to my disabled daughter
by Daniel T. Willingham, Los Angeles Times
Mar 26, 2018
3 minutes
I'm the father of a child who has a rare chromosomal disorder, trisomy-18. It affects about one in 5,000 births and leaves children with profound mental and physical disabilities. Life expectancy is harrowingly brief; some 90 percent of affected infants don't see their first birthday.
There are many reasons why it's important for people to know about this syndrome - to encourage more research, advance better policies for families coping with it, to "raise awareness." But when I consider my daughter Esprit, I'm interested in a specific kind of awareness, the
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