This episode is in honor of Rare Disease Day on February 29th. Dr. Tony Ebel interviews Crystal, a mother of a child with a rare genetic disorder called Sandhoff disease. They discuss Crystal's journey advocating for proper care and support for her son Cayden, as well as empowering other parents going through similar challenges. The episode emphasizes the importance of advocacy and community in improving quality of life for children with rare diseases and their families.Key Topics Covered:0:02 - Introduction to Rare Disease Day2:25 - Crystal shares background on her pregnancy and Cayden's birth11:00 - Frustrations getting referrals for physical therapy14:00 - Learning about chiropractic care as an option20:00 - Regression and hitting a plateau with gross motor skills24:00 - Receiving a recommendation to see a specialist36:00 - Increasing chiropractic care for positive changes41:00 - Connecting families to chiropractic within the Sandhoff community47:00 - Overview of PX Docs online community and social media56:00 - Living in disbelief at the progress being made58:00 - Final thoughts on advocacy and empowermentFollow PX Docs on SocialsInstagram: @pxdocsFacebook: Dr. Tony Ebel & The PX Docs NetworkYoutube: The PX DocsTo Follow More of Cayden’s story on Instagram: @cheeringforcaydenFor more information, visit PXDocs.com to read countless informative articles about the power of Neurologically-Focused Chiropractic Care.To inquire about the PWC Perfect Storm Intensive Program click hereFind a PX Doc Office near me: PX DOCS DirectorySubscribe, share, and stay tuned for more incredible episodes unpacking the power of Nervous System focused care for children!