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S02 E07 Policy and the Power of Patient Advocacy

S02 E07 Policy and the Power of Patient Advocacy

FromOur MBC Life


S02 E07 Policy and the Power of Patient Advocacy

FromOur MBC Life

ratings:
Length:
112 minutes
Released:
Apr 25, 2021
Format:
Podcast episode

Description

It does not take long after a diagnosis of MBC to see that policies and legislation have a tremendous impact on our lives and the resources available to us as we navigate this complex world. In this episode we explore policy and legislation from the perspective of the patient advocate  who have made it their mission to cause change. These incredible individuals help break it all down. Joining us are MBC patient advocates Abigail Johnston, Kelli Davis, and Shirley Mertz. They share their experiences with MBC and how they became involved in advocacy. We also hear from leading policy experts who have done outstanding lobbying over the years, Deb Collyer of Patient Advocates In Research, also known as PAIR, Molly Guthrie from Komen, Barry Lenk from Metavivor, Ivis Sampayo of SHARE Cancer Support, and Fran Visco of the National Breast Cancer Coalition. Here are some great stories about the power of advocacy.More info available on our website www.ourmbclife.orgGot something to Share? Feedback? Email:  ourmbclife@sharecancersupport.org Send us a voice recording via email or through speakpipe on our website.Follow on Facebook, Instagram, and Twitter @ourmbclife
Released:
Apr 25, 2021
Format:
Podcast episode

Titles in the series (100)

From SHARE Cancer Support this is Our MBC Life. A podcast dedicated to exploring life with metastatic breast cancer from the perspective of us, the people living with this disease, and the experts who partner with us to help make our lives better. So glad you’re here since no one should face MBC alone. New episodes available every other Monday and join us on the last Friday of the month for our Trailblazer series. Send your voice memos, ideas, and questions to ourmbclife@sharecancersupport.org and visit us at www.ourmbclife.org.