37 min listen
Episode 204 - Portugal. The Man
FromThe House of Pod
ratings:
Length:
69 minutes
Released:
Nov 7, 2023
Format:
Podcast episode
Description
Kaveh is joined by John and Zoe, from the band Portugal The Man to discuss their daughter's rare neurodegenerative disorder and they're joined by Dr. Stan Crooke, who's started the n-Lorem foundation to help find treatments for ultra rare genetic diseases just like this. Take a listen to hear about the struggles of navigating health care for patients and families and the exciting new world of treatments opening up with ASOs (Anti-Sense Oligonucleotides).Send your questions and comments to hopquestions@gmail.com Hosted on Acast. See acast.com/privacy for more information.
Released:
Nov 7, 2023
Format:
Podcast episode
Titles in the series (100)
Episode 37 - Pat Spurgeon: Rogue Wave: The HOP gang talk with Pat Spurgeon, of the band … by The House of Pod