Is it just me, or as the parent of a medically complex child, does hearing the word “self-care” in a general context make you roll your eyes? Most of us are just trying to keep our kids and ourselves alive and mostly healthy. We don’t have time for bubble baths or hours at the gym or spa
treatments. So what does self-care look like (in the most feasible and east cringy way possible)?
In today’s episode, Amanda Griffith-Atkins is back one more time to discuss this topic. We share all the thoughts and feels from this community on “self-care” and especially how it feels so inaccessible to us as parents of children with rare diseases. Amanda and I also discuss how we can redefine self-care in a way that’s actually helpful to families in our position.
If you’ve been feeling tired, burned out, and honestly, so done with the traditional *SeLf-CaRe* advice, you’re not going to want to miss this episode.

Links:
Listen to all of my previous episodes with Amanda: Ep 131: Chronic
Stress, Ep 130: Fear of Child Loss, Ep 99: Family Planning, & Ep 81: Health Anxiety.
Follow Amanda Griffith-Atkins on Instagram @amanda.griffith.atkins.
Follow us on Instagram @the_rare_life!
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sponsoring an episode.
Fill out our contact form to get a reminder about upcoming discussion meetings and the Skype link to join!
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Join the Facebook group Parents of Children with Rare Conditions.
Access the transcript on the website here.
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