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The Story of Claire (Rebroadcast)

The Story of Claire (Rebroadcast)

FromThe Rare Life


The Story of Claire (Rebroadcast)

FromThe Rare Life

ratings:
Length:
46 minutes
Released:
Jun 22, 2023
Format:
Podcast episode

Description

Although Claire’s medical condition has many characteristics, for Katie and her husband they all pale in comparison to the heart-shattering fact that it is terminal.
In this episode, we laugh and we cry as mom Katie shares all about her adrenaline-junky four-year-old daughter Claire, her pregnancy and birth story, and the
gut-wrenching moments of learning that their precious newborn would not survive childhood.
She also shares ways that she has become a stronger, more gratitude-filled and empathetic person because of Claire and the lethal nature of her diagnosis.
Trigger warning concerning childhood death. 
*This is a rebroadcast of one of my favorite episodes of The Rare Life for you to listen to while we work on production for season 8,
coming in August! If you’d like to discuss this episode with other members of The Rare Life community, we’ll be holding three different meetings run by our
amazing group facilitators every Tuesday at 8pm in PST/CST/EST. Fill out our contact form to get the Zoom link each week!*
Links:
Sign up to get an invitation for our community discussions every Tuesday during the off-season!
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Follow the Facebook page.
Join the Facebook group Parents of Children with Rare Conditions.
Access the transcript on the website here.
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Released:
Jun 22, 2023
Format:
Podcast episode

Titles in the series (100)

This is the real, raw, and all the feels of loving a child with disabilities. Episodes feature parent-guests, professionals, and solo episodes with host Madeline Cheney. Their authentic conversations don’t shy away from the strong and mixed emotions that often accompany medically-complex parenting. Parents listen in to feel seen, validated, and receive much-needed solidarity. Professionals working with disabled people listen in to better understand what is often going on under the surface for a family living with disabilities.