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Making Sense of a Senseless Death

Making Sense of a Senseless Death

FromPatient Stories with Grey Genetics


Making Sense of a Senseless Death

FromPatient Stories with Grey Genetics

ratings:
Length:
32 minutes
Released:
May 8, 2018
Format:
Podcast episode

Description

The first genetic counselor to work within a Medical Examiner’s Office, Nori Williams, MS, CGC talks about how she works with families after the loss of a loved one from Sudden Unexplained Death that turns out to have an underlying cardiogenetic cause. She shares stories of grief, resiliency and hope from families she has worked with, helping them to understand what their loved one’s genetic testing results mean for other family members.


Patient story reference points:

Patient story #1 @ 10:10

Patient story #2 @ 14:55


Resources:

postmortem@nsgc.org

CredibleMeds - Up-to-date list of drugs to avoid for people with LQT

Sudden Arrhythmia Death Syndromes Foundation (SADS)

Book a genetic counseling appointment with Nori!


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Are you looking for genetic counseling?
Patient Stories is sponsored by Grey Genetics, an independent telehealth genetic counseling and consulting company. Book an appointment with a genetic counselor specialized in your area of concern. Choose from our growing Network of Genetic Counselors. All genetic counseling appointments take place over secure, HIPAA-compliant video-conferencing or by phone.
Released:
May 8, 2018
Format:
Podcast episode

Titles in the series (92)

Genetics isn’t always black and white. And the emotions and decisions surrounding genetic testing can be even more complex. Hosted by genetic counselor Eleanor Griffith, the show brings you the personal experiences of patients and genetic counselors.