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Invisible: The Documentary That Makes Fibromyalgia Visible with Director Nick Demos

Invisible: The Documentary That Makes Fibromyalgia Visible with Director Nick Demos

FromFibromyalgia Podcast®


Invisible: The Documentary That Makes Fibromyalgia Visible with Director Nick Demos

FromFibromyalgia Podcast®

ratings:
Length:
56 minutes
Released:
May 9, 2023
Format:
Podcast episode

Description

Everyone with fibromyalgia understands how challenging it can be to explain the invisible pain and fatigue that comes with it. Despite affecting millions of people, there’s still a lack of understanding and awareness about fibromyalgia. That's where the documentary "Invisible” comes in. Through personal stories and expert interviews, "Invisible" explores the impact of fibromyalgia on people's lives and the challenges caused by the lack of understanding and research. For today’s episode, filmmaker Nick Demos joins Tami to discuss his feature documentary on fibromyalgia, Invisible. Nick and Tami have been waiting to do this interview ever since they began working on the film eight years ago. Not wanting to give away the ending before people could watch, a lot had to be kept secret during the production process. Now, they finally get to talk about it publicly. In this conversation, Nick and Tami talk about how Nick became involved with the making of Invisible, its evolution into a documentary about the fibromyalgia community, challenges with finding men when casting the film, how the perception of fibro as a woman’s disease has contributed to the lack of research and understanding, the difficulty balancing creating a piece of art with making a film that would educate and inspire action, Nick’s on-camera life-changing diagnosis, the unfairness of being discriminated against for something outside your control, why this film is vital to the fibro community, Tami’s experience being a part of the film, why it was especially tricky to visually explore stories about an invisible illness, why community is essential, why Tami and Nick consider some aspects of fibromyalgia as a gift, what most surprised Nick while making the film, the truth behind the lack of research on fibromyalgia, upcoming premiere events, how Nick manages his fibromyalgia, Nick’s message for you, and more. Invisible is the film that the fibro community has wanted and needed, and we know you’ll love it.       Note: This episode is not meant to be medical advice. Every person and every situation is unique. The information you learn in this episode should be shared and discussed with your own healthcare providers. To learn more about the resources mentioned in this episode, visit the show notes. For daily doses of hope, inspiration, and practical advice, join Tami on Facebook or Instagram. Need a good book to read? Download Tami's books for free. Ready to take back control of your life and health? Schedule a complimentary consultation with a Certified Fibromyalgia Coach®.
Released:
May 9, 2023
Format:
Podcast episode

Titles in the series (100)

Tired of being held prisoner in your own body? Tami Stackelhouse is an author and Master Fibromyalgia Coach who has gone from disabled to thriving. In this podcast, Tami brings together top fibromyalgia experts and advocates, creating a virtual dream team to help you take back control of your life and health. From doctors and researchers in the traditional medical setting, to coaches and providers of alternative and natural treatment options, this podcast will empower you to feel your best and set you free to live a fibro life you love.