48 min listen
Webinar: Usher syndrome mini-series - Part 1
FromRetina UK
ratings:
Length:
90 minutes
Released:
May 26, 2022
Format:
Podcast episode
Description
This content was recorded during a Retina UK webinar on Tuesday 24 May 2022. You can watch the full version, which includes slides, on our YouTube channel: https://www.youtube.com/c/RetinaUK.
Retina UK are collaborating with Usher Kids UK and CureUsher to deliver a two part webinar mini series about Usher syndrome.
The first instalment will see us joined by a panel of sector experts, including Mr Rob Henderson (Moorfields Eye and Great Ormond Street Hospitals), Chloe Joyner (UsherKids UK), Kate Arkell (Retina UK) and Joanne Milne (CureUsher). We will be covering key questions and topic areas including what Usher syndrome is, how to get a diagnosis, both clinical and genetic, and what will happen after this, the importance of regular testing, how to interpret the genetic data and who can help you understand this and how you can connect with other support services.
The second instalment of the webinar series will be held on Wednesday 22 June at 7.00pm – more details to follow.
Retina UK are collaborating with Usher Kids UK and CureUsher to deliver a two part webinar mini series about Usher syndrome.
The first instalment will see us joined by a panel of sector experts, including Mr Rob Henderson (Moorfields Eye and Great Ormond Street Hospitals), Chloe Joyner (UsherKids UK), Kate Arkell (Retina UK) and Joanne Milne (CureUsher). We will be covering key questions and topic areas including what Usher syndrome is, how to get a diagnosis, both clinical and genetic, and what will happen after this, the importance of regular testing, how to interpret the genetic data and who can help you understand this and how you can connect with other support services.
The second instalment of the webinar series will be held on Wednesday 22 June at 7.00pm – more details to follow.
Released:
May 26, 2022
Format:
Podcast episode
Titles in the series (100)
Look Forward Winter 2012 - Issue 145 by Retina UK